ALSFORUMS.COM   - ALS/MND Support Group   - PLS Support Group   - PBP Support Group   - PMA Support Group   - Donate to ALSForums

Go Back   ALS/MND Support Group Forums > Progressive Bulbar Palsy Support Group > General Discussions About PBP

Reply
Bookmarks:
Share |
 
LinkBack Thread Tools
Old 09-07-2009, 08:01 AM   #1 (permalink)
New Member (Say Hi)
Registered Member
Join Date: 2009
City: Adelaide
State: South Australia
Country: AUS
Diagnosed: 00/0000
Posts: 62
Blog Entries: 3
Anastasia is on a distinguished road
Send a message via Yahoo to Anastasia
Cool Re sesitivity to chemicals and smells.

From a different perspective, I have held back from saying this to anyone ,but I am having real trouble dealing with the stange new odour our loved one has all the time and feel guilty for even mentioning it here online, His hygiene is good but he feels the cold terribly and is rugging up in warm clothes. The odour is not regular body odour but a strong salty smell. Has anyone had a similar experience and what to do ??? He is unaware and of course we wouldnt wish to embarrass him.Seems petty in the big scheme of things ,I know, but am just wondering is it some change in his body s metabolism or what?
Anastasia is offline   Reply With Quote
Old 09-07-2009, 12:46 PM   #2 (permalink)
Al
Super Moderator
Registered Member
Al's Avatar
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Posts: 7,184
Al is on a distinguished road
Send a message via Yahoo to Al Send a message via Skype™ to Al
Default Re: Re sesitivity to chemicals and smells.

Has he had any med changes lately. They can change the body chemistry. The body throwing off ketones during weight loss can produce odours. His being cold makes me think of weight loss. A doc can check it with test strips I believe.

AL.
Al is offline   Reply With Quote
Old 09-07-2009, 03:17 PM   #3 (permalink)
Extremely Helpful Member
Registered Member
BethU's Avatar
Join Date: 2008
City: Los Angeles
State: California
Country: USA
Diagnosed: 05/2008
Posts: 2,859
BethU is on a distinguished road
Default Re: Re sesitivity to chemicals and smells.

Anastasia ... I have noticed it on myself from time to time. Can't identify it as salty, but def. sour and unpleasant. When I notice it I sneak off for quick body washdowns two or three times a day. It's not too often ... every couple of weeks? ... but I've been embarrassed to ask about it. It worries me what will happen when I can't manage my own hygiene (I'm close to that point), and my poor caregiver will have to deal with it.

Also, I had my BiPap mask off for a couple hours this morning, and put it back on and it had a distinct vinegar smell. That has to have been from my breath, since I'm the only one around it. I don't know what that is about.

Al's theory of ketones sounds logical.
BethU is offline   Reply With Quote
Old 09-07-2009, 07:28 PM   #4 (permalink)
New Member (Say Hi)
Registered Member
Join Date: 2009
City: Adelaide
State: South Australia
Country: AUS
Diagnosed: 00/0000
Posts: 62
Blog Entries: 3
Anastasia is on a distinguished road
Send a message via Yahoo to Anastasia
Default Re: Re sesitivity to chemicals and smells.

Thank you. I felt awkward mentioning it but am glad i did. Grampals theory re ketones etc is very possible and also re the weight loss. Thankyou also Bethu, and I appreciate how you must feel.As I say, in the big scheme of things , its not a big deal but it helps to understand these things when caring for our loved ones. Take care.
Anastasia is offline   Reply With Quote
Old 09-08-2009, 09:39 AM   #5 (permalink)
Member
Registered Member
asantiago's Avatar
Join Date: 2009
City: Glenpool
State: OK
Country: US
Diagnosed: 00/0000
Posts: 140
asantiago is on a distinguished road
Default Re: Re sesitivity to chemicals and smells.

Anastasia,
My mom had a really bad odor that no amount of cleaning got rid of. Even after a fresh shower, with deodorant, teeth brushed, mouth swabbed with scope, and scented body lotion, it was still there. I was experiencing morning sickness from pregnancy while caring for mom and really really struggled with it. Especially when suctioning her. I never let on that she had the odor and we really never knew what caused it.
asantiago is offline   Reply With Quote
Old 09-09-2009, 12:10 AM   #6 (permalink)
New Member (Say Hi)
Registered Member
Join Date: 2009
City: Adelaide
State: South Australia
Country: AUS
Diagnosed: 00/0000
Posts: 62
Blog Entries: 3
Anastasia is on a distinguished road
Send a message via Yahoo to Anastasia
Smile Re: Re sesitivity to chemicals and smells.

Thankyou re your response. I guess the losing weight factor ,metabolic changes etc come into it. At the end of the day ,we wouldnt be so hurtful as to mention it but was wondering.
How you doing now your mum has gone. Must be a real absence in your life after so much involvement. We hope you are taking care of you and yours.
Anastasia is offline   Reply With Quote
Old 09-09-2009, 08:03 AM   #7 (permalink)
Member
Registered Member
asantiago's Avatar
Join Date: 2009
City: Glenpool
State: OK
Country: US
Diagnosed: 00/0000
Posts: 140
asantiago is on a distinguished road
Default Re: Re sesitivity to chemicals and smells.

I'm doing ok now - thanks for asking. The first three months or so I was just a mess all the time. All the firsts have been hard. First Mother's Day, my first birthday witout her morning phone call. The worst was the day we found out we are having a boy, all I wanted to do was call and share my excitement (she was sure it was going to be a boy she told me before she died). The last two months or so have been a little easier. As time passes healing takes place but I miss her more. In a few weeks when the baby is born will probably be the hardest becasue she loved loved loved her grandchildren and for me not to share that special occasion with her will leave me feeling a little lonely despite it being a happy occasion. I miss her everyday!
asantiago is offline   Reply With Quote
Reply

Tags
back


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools


Similar Threads for: Re sesitivity to chemicals and smells.
Thread Thread Starter Forum Replies Last Post
Sensitivity to smells and chemicals mike b General Discussions About PBP 10 07-11-2009 12:19 AM
Sensitivity to smells Pollyanna General Discussion About ALS/MND 6 02-18-2007 07:14 PM


    
   
   
   
  ALSforums - Get help and support with ALS/MND   


no new posts