I am devastated! My sister was diagnosed almost 2 years ago. NOw she is in a chair crumbled up like a piece of paper. She still has hope that a cure will miraclously save her. Is there any research or experiments in or near the Chicago land area? Email me if you can at stwyatt@cps.edu Thanks!
I am so far away from where you and your sister live, so I cant answer your plea, but I can offer the fact that I care. Take heart and take care. Cheers, Anastasia.
I am similar to your sister, dx 18 months ago and hoping for a cure. There is tons of research going on worldwide. Often we are unaware of it. The trouble is, it takes SO long to get anywhere. Oh how I wish they would hurry up.