I have posted in the general forum before, but have some questions/worries about my new symptoms.
For the last 2 weeks, I have had numbness primarily on the left side of my face, which seems to go into my throat and tongue. I also get a tightening feeling, not painful but tightening (spasms?) Usually with the throat tightening I do feel like a big lump is in there and it is hard to swallow. My tongue will also contract, that also seems to be left-sided for now. With that I have had upper lip tremors when I smile. My recent trip to my neuro was pretty disappointing in terms of answers. He saw my lip tremors, said my tongue appears normal and was not fasiculating on exam, and just wants to see me back in 3 months. My guess is we are just playing the waiting game to see what else progresses. ENT visit just looked at the back of my throat and said all looks normal except a slight swelling at the base of the tongue. Normal vocal cords. I have had lots of other lower body weirdness--increase in numbness, tingling, jolt-like spasms, fasiculations and major fatigue. And yes, all of this was extrememly fast onset--only since late December 08. My EMG was clean, and we are repeating that the end of April. I have lost about 15 pounds since this started, partly from extreme anxiety, and partly because my tongue/mouth feels so funny it is hard to swallow anything but softer foods.
Any advice? My family is wanting me to try to get into a University doctor ASAP, but ASAP will mean at least a 3 month wait. Should I call and get on the list?
Bless you all!
For the last 2 weeks, I have had numbness primarily on the left side of my face, which seems to go into my throat and tongue. I also get a tightening feeling, not painful but tightening (spasms?) Usually with the throat tightening I do feel like a big lump is in there and it is hard to swallow. My tongue will also contract, that also seems to be left-sided for now. With that I have had upper lip tremors when I smile. My recent trip to my neuro was pretty disappointing in terms of answers. He saw my lip tremors, said my tongue appears normal and was not fasiculating on exam, and just wants to see me back in 3 months. My guess is we are just playing the waiting game to see what else progresses. ENT visit just looked at the back of my throat and said all looks normal except a slight swelling at the base of the tongue. Normal vocal cords. I have had lots of other lower body weirdness--increase in numbness, tingling, jolt-like spasms, fasiculations and major fatigue. And yes, all of this was extrememly fast onset--only since late December 08. My EMG was clean, and we are repeating that the end of April. I have lost about 15 pounds since this started, partly from extreme anxiety, and partly because my tongue/mouth feels so funny it is hard to swallow anything but softer foods.
Any advice? My family is wanting me to try to get into a University doctor ASAP, but ASAP will mean at least a 3 month wait. Should I call and get on the list?
Bless you all!