Old 12-01-2018, 08:54 PM #1 (permalink)
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Default Botox injections

I have been having a very hard time with saliva. It has really gotten worse in the past 3 months. My neurologist at the ALS Clinic has given me two medications. One is a capsul and the other is drops under my tongue. They help, but very minimally. Her suggestion is to get Botox injections. Do other PALS have any thoughts on this solution?
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Old 12-01-2018, 09:04 PM #2 (permalink)
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Default Re: Botox injections

It is my understanding that you should not use Botox if you have ALS.
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Old 12-01-2018, 09:13 PM #3 (permalink)
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Default Re: Botox injections

That was my thought too. The neurologist said it applied to those who could still eat and still speak. Side effects could cause problems with the throat. Since I can take absolutely nothing by mouth and haven’t spoken in three months, she feels that the injections would be ok. I’m still a little apprehensive.
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Old 12-01-2018, 09:25 PM #4 (permalink)
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Default Re: Botox injections

Botox is considered a legitimate option for saliva, and this small study for gait improvement in spasticity also suggests relative safety. The "B" subtype has better data in re saliva so far; I've attached a paper laying out A vs. B.
Attached Files
File Type: pdf Guidubladi, 2012.pdf (218.6 KB, 39 views)

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Old 12-01-2018, 10:41 PM #5 (permalink)
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Default Re: Botox injections

My husband gets them clenching his jaw and saliva, they help quite a bit.
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Old 12-01-2018, 10:54 PM #6 (permalink)
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Default Re: Botox injections

Botox is definitely given to people with ALS. My neurologist mentioned it as an option for tight neck and jaw muscles if all else fails. However, it is not an entirely benign procedure.

Read this for one perspective:

Salivary Glands Botox Shot
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