jo aust
Member
- Joined
- Oct 16, 2006
- Messages
- 11
- Reason
- Loved one DX
- Country
- AU
- State
- Queensland
- City
- Townsville
Hi it is me Jo. My mum found out she had pbp sept last year. She is going good on her rilutek. She has not been able to talk for about a least six months now but she still gets around. She has just been given a suction machine to clear her mouth out, by the association here in aust. They have also given her a talking machine but she prefers a kids doodle board. She has been tube fed for a year now easy to do, my kids call it her milkshakes, they say shes lucky she gets milk shakes all the time. I do family daycare and all the kids love her. They understand her actions and ask very nicely for the use of her doodle pad to draw pictures. The other day they said they would like to fix her voice for her. It was very sweet. The only problem we have here would be the fact that they only let us order two weeks of food at a time. I felt like telling the hospital staff that how would they like it we restricted how much food they were able to buy in their grocery trolly at the supermarket. Anyway have a good christmas guys. Mum and I will be relaxing in the spa under the palm trees in my back yard, after a drink or two (it can be easily poured down mums tube.)
Jo
Jo