Idaho2790
Distinguished member
- Joined
- Dec 22, 2017
- Messages
- 150
- Reason
- PALS
- Diagnosis
- 01/2018
- Country
- US
- State
- Idaho
- City
- Leadore
I was just diagnosed with Progressive Bulbar Palsy about a month ago. Was told by the ALS Clinic that my limbs were good and might remain that way for another year or two. Within this last month, though, I seem to have more of a problem breathing. This is more when I try to breathe through my nose than with my mouth open. Is there a test for breathing that I can anticipate when I return to UCSF In April? No one mentioned that as a possibility, although I do read on this forum that many people are using a BiPap. This has not been suggested or even mentioned.. thanks for the help.