I am seeking guidance from anyone who has tried Botox injections of the Salivary Glands to decrease secretions associated with PBP. My mom is 71 and is three years into this disease. She has a feeding tube and is not allowed to take anything orally. She has tried numerous medications and patches but all have disagreed with her. She uses a cough assist machine very frequently to help her get rid of the build up in her throat, but it is so frequent that it is wearing her out. We are desperate to find something that will make her more comfortable, and Botox is one measure we heard about. Has anyone tried it? If so, I would be so grateful to hear about your experience.
You group seem wonderfully supportive and as a newcomer I appreciate the help so much!