Manhattanite
Distinguished member
- Joined
- May 10, 2015
- Messages
- 209
- Reason
- Lost a loved one
- Diagnosis
- 05/2015
- Country
- US
- State
- NY
- City
- New York
Well, today we had the second opinion and the specialist confirmed the PBP diagnosis. It is what I expected given the symptoms. Honestly I have no tears left and I feel sort of numb although seeing my partner suffer is unbearably painful.
We have a third opinion next week but at this point it is more about choosing the ALS clinic where he feels more at ease.
It is strange to know what the stages of the disease will be -- like having an itinerary for a trip not knowing when you will reach each destination.
We have a third opinion next week but at this point it is more about choosing the ALS clinic where he feels more at ease.
It is strange to know what the stages of the disease will be -- like having an itinerary for a trip not knowing when you will reach each destination.