PBP with strange tongue sensation

[renza8]

Hi all, I've just joined from the UK. Mum was finally diagnosed with bulbar MND this March, having had deteriorating slurred speech since Dec 2013. One 'symptom' she is really struggling with is the sensation of a fine cut or hair being on the top of her tongue. This started suddenly 5 months ago. None of her MND team have encountered this problem before & can't offer any advise. This 'feeling' is sending her crazy, as she constantly rubs her tongue to try & get rid of it, therein making her mouth sore & jaws ache. The only relief she gets is either going to sleep, or brief respite rubbing ulcer gel on the area to form a layer on her tongue, which she then proceeds to rub off by pushing her tongue against her teeth & guns again, without even thinking about it. She finds the feeling is also eased slightly when eating & drinking. Mum is not one to complain & has always just got on with things, but this constant sensation is really having a terrible effect on her.

I would love to hear if anyone has experience with this type of problem & if there is anything to ease it?

Thank you for taking the time to read my waffle!

Kerenza

 

[renza8]

Tip of tongue, not top! Sorry!