nmarron
New member
- Joined
- Oct 28, 2011
- Messages
- 3
- Diagnosis
- 12/2011
- Country
- US
- State
- New Mexico
- City
- Albuquerque
I am a new member and I want to thank all of you for your wealth of information.
I have been reading your posts since September 2011 when I first noticed slurred speech and shortness of breath. After 4 months of being pushed around from test to test I got a diagnosis of Bulbar Palsy or PBP, depending on which neurologist you talk to. My local one is saying BP and the Mayo Clinic says PBP.
In 5 months I have gone from normal to very slurred and slow speech, I get out of breath walking up 10 stairs and I choke on thin liquids about once every three weeks. The scary thing for me is the speed with which this is all happening and the doctors say nothing. This forum has already helped be 100 times more than the doctors I have talked to.
I have the emotional outbursts as well but since I have been taking dextro/quinidine they have reduced by about 80%.
I know everyone progresses at a different rate but has anyone experienced this fast of a progression?
I feel like I am on a train that is accelerating out of control.
I have been reading your posts since September 2011 when I first noticed slurred speech and shortness of breath. After 4 months of being pushed around from test to test I got a diagnosis of Bulbar Palsy or PBP, depending on which neurologist you talk to. My local one is saying BP and the Mayo Clinic says PBP.
In 5 months I have gone from normal to very slurred and slow speech, I get out of breath walking up 10 stairs and I choke on thin liquids about once every three weeks. The scary thing for me is the speed with which this is all happening and the doctors say nothing. This forum has already helped be 100 times more than the doctors I have talked to.
I have the emotional outbursts as well but since I have been taking dextro/quinidine they have reduced by about 80%.
I know everyone progresses at a different rate but has anyone experienced this fast of a progression?
I feel like I am on a train that is accelerating out of control.