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Jennie

New member
Joined
Mar 19, 2011
Messages
4
Reason
Loved one DX
Country
UK
State
Merseyside
City
St helens
Hi everyone so sorry to hear about al these terrible diseases! Just wondering if anyone knows if bone marrow and stem cell transfers help mend pbp ? My father has just been diagnosed yesterday and they said he might only live for 3 months !:( he has had severe twitching and muscle spasms since November last year , in the last month his speech has become really slurred and everyone thought it was a stroke until diagnosis :( can anyone help me please as I will do anything to help I am already a blood and marrow donor, many thanks jen
 
Hi Jen
Unfortunately neither bone marrow or stem cell therapy is available for pbp. Stem cell treatment for MND 's are still very much at trial stage. All the centers advertising that they provide treatment with stem cells, are just cheating people out of there money. I could offer good news or treatment, but none is available at present. Treatment is purely symptomatic.
Aly
 
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