icecreamlady
Active member
- Joined
- Jun 3, 2009
- Messages
- 38
- Reason
- Learn about ALS
- Diagnosis
- 06/2009
- Country
- US
- State
- Pa.
- City
- Beaver Falls
Hi everyone-
I recieved my Bipap/Avap machine last week. The masks are kind of a pain, you look like you are about to go scuba diving! Anyway, I feel much better during the day... and if i get short of breath I will use it while watching TV or just relaxing. My cough assits comes tomorrow.
My pulmonary doctor believes my PLS has changed to ALS. I go to the neurologist the beginning of November. Then have an appointment at the ALS clinic in Pittsburgh the week after... I just would like to get the proper diagnoses. My SSDI got turned down, so I have to appeal it soon. I know that if the neurologist agrees with the pulmonary doctor I can automatically get benefits. So, I am just waiting for the right diagnoses>>>
Does anyone have trouble with stomach distention, i feel like I am 6 months pregnant?
I am still mobile and moving around, it seems like my chest muscles, throat muscle have
been affected most. Stomach muscle weaken too? This disease bites!
Lora
No Fear-Just Faith!
I recieved my Bipap/Avap machine last week. The masks are kind of a pain, you look like you are about to go scuba diving! Anyway, I feel much better during the day... and if i get short of breath I will use it while watching TV or just relaxing. My cough assits comes tomorrow.
My pulmonary doctor believes my PLS has changed to ALS. I go to the neurologist the beginning of November. Then have an appointment at the ALS clinic in Pittsburgh the week after... I just would like to get the proper diagnoses. My SSDI got turned down, so I have to appeal it soon. I know that if the neurologist agrees with the pulmonary doctor I can automatically get benefits. So, I am just waiting for the right diagnoses>>>
Does anyone have trouble with stomach distention, i feel like I am 6 months pregnant?
I am still mobile and moving around, it seems like my chest muscles, throat muscle have
been affected most. Stomach muscle weaken too? This disease bites!
Lora
No Fear-Just Faith!