10-05-2009, 01:00 PM
|
#1 (permalink)
| | Extremely Helpful Member Registered Member Join Date: 2008 City: Springfield State: Missouri Country: USA Diagnosed: 12/2008
Posts: 2,216
|  Just Back From Another Neuro Appt
No appreciable change. Looks like the dx of PLS isn't going away any time soon. I'm still pulling for BFCS, PNS (pinched nerve syndrome), or maybe I'm just some sort of nut case and everything is just in my head. Oh, wait! That would be PLS, wouldn't it?
Zaphoon
| 
|  | |
10-05-2009, 01:15 PM
|
#2 (permalink)
| | Very Helpful Member Registered Member Join Date: 2008 City: uk State: uk Country: uk Diagnosed: 11/2007
Posts: 1,304
| Re: Just Back From Another Neuro Appt
hey kim,no change is good news.
i guess us pls'ers are nut cases,it helps when you have a disease they can not 100% prove untill autopsy.
lets hope your plateau period continues  | |
| | |
10-05-2009, 01:22 PM
|
#3 (permalink)
| | Moderator Registered Member Join Date: 2006 City: Abbotsford State: BC Country: CA Diagnosed: 09/2005
Posts: 1,966
| Re: Just Back From Another Neuro Appt
CONGRATULATIONS! That is great news. Slow, or no, progression is fantastic.
| 
| | |
10-05-2009, 01:28 PM
|
#4 (permalink)
| | Extremely Helpful Member Registered Member Join Date: 2008 City: Springfield State: Missouri Country: USA Diagnosed: 12/2008
Posts: 2,216
| Re: Just Back From Another Neuro Appt
Thanks, Caroline and Joel!
I've got to say that I like and trust this neurologist. He's smart and personable. Every now and then, I find myself listing to the port side, looking for something to steady myself with but this doesn't happen with enough frequency for me to be alarmed over. I'm nowhere near "wall walking" yet.
My rowing machine and I are getting along pretty well. I can sit on the thing for 20 minutes (I could sit there for a lot longer if my butt didn't sore.). Notice I didn't say anything about exercising on it - just sitting. Its great to pretend! Just give me a zip up sweater, nice shirt with necktie, slip-on loafers, a pair of tennis shoes and a daily visit from some weird delivery guy and I'll remain okee-dokee fine!
Hey! Its a WONDERFUL day in the neighborhood!
Zaphoon
Last edited by Zaphoon : 10-05-2009 at 01:29 PM
Reason: addendum
| |
| | |
10-05-2009, 01:33 PM
|
#5 (permalink)
| | Senior Member Registered Member Join Date: 2008 City: Melville State: Saskatchewan Country: CA Diagnosed: 00/0000
Posts: 739
| Re: Just Back From Another Neuro Appt
No change is good change. Won't you be my neighbour?  | |
| | |
10-05-2009, 01:37 PM
|
#6 (permalink)
| | Extremely Helpful Member Registered Member Join Date: 2008 City: Springfield State: Missouri Country: USA Diagnosed: 12/2008
Posts: 2,216
| Re: Just Back From Another Neuro Appt
Hey there, Keeker! Of course I'll be you neighbor! How about a quick trip to "The Land Of Make Believe!" There's some guy in a dog suite I've been wanting to kick for quite some time (and I believe I have just enough EL to get the job done!).
Caroline, I'm not quite ready for the autopsy yet. I can hang with a certain degree of uncertainty on the dx for a while longer yet.
I get to operate the trolly!
Zaphoon
| |
| | |
10-05-2009, 02:29 PM
|
#7 (permalink)
| | Very Helpful Member Registered Member Join Date: 2007 City: philadelphia State: pennsylvania Country: united states
Posts: 1,220
| Re: Just Back From Another Neuro Appt
Kim,
That's great everything is still the same....
| |
| | |
10-05-2009, 05:14 PM
|
#8 (permalink)
| | Very Helpful Member Registered Member Join Date: 2008 City: Alexandria State: Ontario Country: CA Diagnosed: 10/2008
Posts: 1,770
| Re: Just Back From Another Neuro Appt
Kim,
That is just fantastic. It would be more than fantastic if it went away. So, its just JUST.
I like your exercise regime. I would try it , but I would be stuck there afterwards. Its hard to lift 1/8 ton dead weight off of the floor 
Good Stuff.
Glen
| |
| | |
10-06-2009, 12:34 AM
|
#9 (permalink)
| | Senior Member Registered Member Join Date: 2008 City: Melville State: Saskatchewan Country: CA Diagnosed: 00/0000
Posts: 739
| Re: Just Back From Another Neuro Appt
Did the guy in the dog suit really get on your nerves? I wanted to slug the king!
| |
| | |
10-06-2009, 01:48 PM
|
#10 (permalink)
| | Extremely Helpful Member Registered Member Join Date: 2008 City: Springfield State: Missouri Country: USA Diagnosed: 12/2008
Posts: 2,216
| Re: Just Back From Another Neuro Appt
I don't know which one was worse, the dog-man or Mr. Mcfeely. "Happy Delivery" just drove me nuts and dog-man wasn't at all believable and had a poor woof. No wonder there wasn't a Mrs dog-man on the show...
| |
| | |
10-06-2009, 04:00 PM
|
#11 (permalink)
| | Extremely Helpful Member Registered Member Join Date: 2008 City: Los Angeles State: California Country: USA Diagnosed: 05/2008
Posts: 2,859
| Re: Just Back From Another Neuro Appt
Kim, if you're not getting any better, I'll settle for your not getting any worse! Good going.
Hang in there.
(I like the image of you on the rowing machine!)
| |
| | |
10-06-2009, 08:00 PM
|
#12 (permalink)
| | Senior Member Registered Member Join Date: 2009 City: halifax State: ma. Country: usa Diagnosed: 07/2009
Posts: 594
| Re: Just Back From Another Neuro Appt
i agree with beth , and hope it stays that way
| |
| | |
10-06-2009, 08:08 PM
|
#13 (permalink)
| | Extremely Helpful Member Registered Member Join Date: 2008 City: Springfield State: Missouri Country: USA Diagnosed: 12/2008
Posts: 2,216
| Re: Just Back From Another Neuro Appt
Beth and Td,
Thanks for the kindnesses.
It was another good visit - I'll have to see what he wrote for the record. I still don't fully believe I have PLS but I'm not the neurologist. I keep looking at the odds. On the other hand, I am thankful that Mr. Lower Motor Neuron is still on the job.
Hey, what did I ever do to my upper motor neurons, anyway? Here they go and bail out on me for no good (or at least unkown) reason.
| |
| | |
10-06-2009, 08:54 PM
|
#14 (permalink)
| | Very Helpful Member Registered Member Join Date: 2008 City: oakland twp State: michigan Country: usa Diagnosed: 00/0000
Posts: 1,072
| Re: Just Back From Another Neuro Appt
Hey Kim~
I am still hovering around, and I am glad that things are not progressing!!! That is what any of us with sx want!!! Just some weird funky muscle thing that is not going anywhere!!! I really am glad as anyone can be in this circumstance would be.....
Gotta go, the baseball play off's are on and our Tigers are playing the Twins and it is an AWESOME game and my boys are going crazy!!!!
Blessings!!!!!!!!!
April
| |
| | |
10-06-2009, 08:55 PM
|
#15 (permalink)
| | Senior Member Registered Member Join Date: 2009 City: halifax State: ma. Country: usa Diagnosed: 07/2009
Posts: 594
| Re: Just Back From Another Neuro Appt
i understand complety i keep looking for it not to be als but , symptoms are there and trying to find it under something else
| |
| | |
Currently Active Users Viewing This Thread: 1 (0 members and 1 guests) | | |
|
