- Joined
- Sep 25, 2017
- Messages
- 72
- Reason
- PALS
- Diagnosis
- 09/2016
- Country
- US
- State
- California
- City
- Cupertino
Wow, each neurologist has a different answer! During my first 3 and a half years, several neurologists said probable PLS. When I was sent to Clinic, that neurologist described it as a “slow progressing variant of ALS.” He didn’t like the term PLS, saying that all fell under ALS.
Now a year and half later, a neurologist, subbing in, referred to my PLS! At the next clinic, which was yesterday, I asked the neurologist, another substitute, about this. He is one who puts all under ALS. After I pushed the point, he checked me out and said “upper motor neuron dominant.”
So switched to UMND/PLS instead of ALS.
This is where I thought I should be, having read up on PLS on-line and all the old PLS threads here on the Forum.
Will keep following the ALS threads, though, since it is more active, and I’ve learned a lot there as well. Just glad to be where people are sharing.
Thanks,
Betty
Now a year and half later, a neurologist, subbing in, referred to my PLS! At the next clinic, which was yesterday, I asked the neurologist, another substitute, about this. He is one who puts all under ALS. After I pushed the point, he checked me out and said “upper motor neuron dominant.”
So switched to UMND/PLS instead of ALS.
This is where I thought I should be, having read up on PLS on-line and all the old PLS threads here on the Forum.
Will keep following the ALS threads, though, since it is more active, and I’ve learned a lot there as well. Just glad to be where people are sharing.
Thanks,
Betty