lilnicky
New member
- Joined
- Dec 1, 2017
- Messages
- 1
- Reason
- DX UMND/PLS
- Diagnosis
- 11/2017
- Country
- Ire
- State
- Co. Dublin
- City
- Dublin
Hiya guys,
New to this forum thought i would introduce myself. I have enjoyed reading all your helpful posts.
I was having a nosey round but couldnt find an answer to my query specifically so while saying hello i thought i would ask here.
So the very short version of a very long story.... i have been unwell for many years and have had one rubbish neuro after the other who either did nothing or said "you probably have MS" which isnt very helpful.
Anyway after my countless number serious fall down the stairs, a decent neuro and a ruiling out of MS... i was finally diagnosed with PLS.
They were able to diagnose it easily without a wait due to the length of time its been going on for.
Now the things im confused about. I never really thought it was MS because it obviously wasnt the progressive form as the brain lesions are not significant in number but it also cant be the replasing form as im progressively ill. With hindsight its obvious i have motor neurone. Anyway im going off track.
The main reason they thought MS is that i was diagnosed with optic neuritis.... even though i have never lost my sight which i thought was odd... my optic nerves just looks odd on inspection. I also had a nerve conduction test done on my ON and it was rubbish. Why do i have this? Can MND cause ON issues.... or is it possible the ON diagnosis wasnt quite right?
I also have 2 symptoms of MS that i cant seem to find as a symptom of MND. I am unable to regulate body temperature. Im always super hot or super cold. Also i feel my cognitive function has declined. Im not as sharp as i used to be. It has been suggestee that the hot/cold and cognitive function could be a result of literally ALWAYS being super exhausted and fatigued.
While it was a shock i do agree with the PLS diagnosis. I never considered MND but it is actually glaringly obvious now. I went to see that steven hawkins film a few years back and the part where he fell down the stairs made me flinch. I looked at my mate and said.... i know that feeling. Hindsight is a wonderful thing.
It is just those symptoms i cant explain. Is temp and cognitive function affected? Is my Optic Neuritis wrong or just a coincidence? Im so confused.
Sorry for the very long messege xxx
New to this forum thought i would introduce myself. I have enjoyed reading all your helpful posts.
I was having a nosey round but couldnt find an answer to my query specifically so while saying hello i thought i would ask here.
So the very short version of a very long story.... i have been unwell for many years and have had one rubbish neuro after the other who either did nothing or said "you probably have MS" which isnt very helpful.
Anyway after my countless number serious fall down the stairs, a decent neuro and a ruiling out of MS... i was finally diagnosed with PLS.
They were able to diagnose it easily without a wait due to the length of time its been going on for.
Now the things im confused about. I never really thought it was MS because it obviously wasnt the progressive form as the brain lesions are not significant in number but it also cant be the replasing form as im progressively ill. With hindsight its obvious i have motor neurone. Anyway im going off track.
The main reason they thought MS is that i was diagnosed with optic neuritis.... even though i have never lost my sight which i thought was odd... my optic nerves just looks odd on inspection. I also had a nerve conduction test done on my ON and it was rubbish. Why do i have this? Can MND cause ON issues.... or is it possible the ON diagnosis wasnt quite right?
I also have 2 symptoms of MS that i cant seem to find as a symptom of MND. I am unable to regulate body temperature. Im always super hot or super cold. Also i feel my cognitive function has declined. Im not as sharp as i used to be. It has been suggestee that the hot/cold and cognitive function could be a result of literally ALWAYS being super exhausted and fatigued.
While it was a shock i do agree with the PLS diagnosis. I never considered MND but it is actually glaringly obvious now. I went to see that steven hawkins film a few years back and the part where he fell down the stairs made me flinch. I looked at my mate and said.... i know that feeling. Hindsight is a wonderful thing.
It is just those symptoms i cant explain. Is temp and cognitive function affected? Is my Optic Neuritis wrong or just a coincidence? Im so confused.
Sorry for the very long messege xxx