Old 10-16-2017, 10:10 PM #1 (permalink)
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Default PLS Study Columbia Univ Dr. Massac

Well in August I was asked to be in a study for PLS. I was diagnosed 4 years ago. Their are 3 people from TX. Neurology in Dallas that are part of the study. Columbia Univ. is heading up the study. There are participants all over the USA , they are trying, at this point to get base line questions for the purpose of diagnosing PLS. I believe this is the first study of this kind. This is estimated to take 24 weeks to complete.

The exciting thing I think is they are starting to look at PLS. I'm told after this study, then they will study DNA, tissue, I think maybe there is light at the end of this tunnel, or maybe it's just a train. It may not be a cure, but at least it's something.
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Old 10-16-2017, 10:16 PM #2 (permalink)
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Default Re: PLS Study Columbia Univ Dr. Massac

Oh wow! Thank you for participating. I sincerely hope they find enough to carry forward.
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Old 10-21-2017, 11:52 AM #3 (permalink)
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Default Re: PLS Study Columbia Univ Dr. Massac

Is it possible to post a link to this study so I can look at it? I'm unable to find the study online.

Last edited by LookingAround : 10-21-2017 at 12:01 PM Reason: Add that I tried to find study.
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Old 10-23-2017, 05:30 PM #4 (permalink)
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Default Re: PLS Study Columbia Univ Dr. Massac

I'm not great at posting Links. I'll give you my connection Columbia University Medical Center Department of Neurology Clinical
Research Center my contact is Johnathan Huff 212 305 2508
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