Kathy Dont feel alone about the no feeling Doctor .I was accepted at NIH Bethesda Maryland .He was suppose to sign the App and send it ,instead he ripped it up said he didnt think it was neccessary . Had one said we cant help you ,but come back so we can keep track of your progression . Have another that i took some vials in from Northwestern Univ for a blood study and wouldnt donate the Phlebotomy cost .
Makes you wander who wants a cure and who wants your money ? I Have PLS 7+ yrs. i have no apreciable pain only when i get cramps in my calves or when i do a Face Plant into the sidewalk or wall . I do get some , i think Arthritis pain in the Lumbar area , but i use a TENS / EMS unit for an Hour or so which helps,also on my throat for swallowing issues . I Think each of us has a little bit different symptoms than the next . KInd of a strange disease . Geo