hopeagainsthope
Member
- Joined
- Feb 11, 2016
- Messages
- 24
- Reason
- DX UMND/PLS
- Diagnosis
- 03/2016
- Country
- UK
- State
- UK
- City
- England
Hi Everyone.I am waiting to be seen hopefully in the not too distant future at our big Neuro centre in London (horrendous waiting list), as apparently I am a mystery.
In the meantime, I am now noticing that both my legs are from knee down are changing shape. The shins have flattened out and both legs look like they have "lost weight". The inner part of my knees have also "hollowed" out.
I have not lost any weight, this remains steady. I have noticed this over the last month. I have had a nasty fall last week, but generally can still walk, with the spasticity.
Also I am getting lots of flickering of muscles all over, esp the thigh area, and pain,but I am have had this in bouts before.
My EMG in April was clean. Is it possible in such a short period of time that this could be me progressing to LMN issues?
In less than four months? Seems unlikely.
Or could it just be my legs changing shape because of over a year of abnormal walking and spasticity?
Would Bacoflen be the answer to stop some of these changes in my legs? Has anyone else seen such changes in their limbs with UMN & Spasticity? I would really appreciate your thoughts on the matter. Thank you!
In the meantime, I am now noticing that both my legs are from knee down are changing shape. The shins have flattened out and both legs look like they have "lost weight". The inner part of my knees have also "hollowed" out.
I have not lost any weight, this remains steady. I have noticed this over the last month. I have had a nasty fall last week, but generally can still walk, with the spasticity.
Also I am getting lots of flickering of muscles all over, esp the thigh area, and pain,but I am have had this in bouts before.
My EMG in April was clean. Is it possible in such a short period of time that this could be me progressing to LMN issues?
In less than four months? Seems unlikely.
Or could it just be my legs changing shape because of over a year of abnormal walking and spasticity?
Would Bacoflen be the answer to stop some of these changes in my legs? Has anyone else seen such changes in their limbs with UMN & Spasticity? I would really appreciate your thoughts on the matter. Thank you!