ShiftKicker
Moderator
- Joined
- Mar 16, 2015
- Messages
- 8,386
- Reason
- DX UMND/PLS
- Diagnosis
- 06/2015
- Country
- CA
- State
- BC
- City
- Vancouver
Hello-
Looking to hear from others with primarily UMN symptoms if they've tried steroids, and if they experienced reduction in spasticity/increase in energy.
I'm still searching for something to help my fatigue. A year ago I had dental surgery and received 4 days' worth of dexamethasone for inflammation. I felt like a million bucks as a result. While I told any doctor I visited at the time (and I was seeing quite a few!) about my positive response to steroids, none really took it seriously. I have a doctor now who is interested in the possible benefits, but I wanted to know if anyone else had any experiences, good or bad that they might want to share.
There's some info floating around out there that indicates positive effects in some people, but I am concerned about potential side effects or set-backs in MND symptoms.
Many thanks-
Fiona
Looking to hear from others with primarily UMN symptoms if they've tried steroids, and if they experienced reduction in spasticity/increase in energy.
I'm still searching for something to help my fatigue. A year ago I had dental surgery and received 4 days' worth of dexamethasone for inflammation. I felt like a million bucks as a result. While I told any doctor I visited at the time (and I was seeing quite a few!) about my positive response to steroids, none really took it seriously. I have a doctor now who is interested in the possible benefits, but I wanted to know if anyone else had any experiences, good or bad that they might want to share.
There's some info floating around out there that indicates positive effects in some people, but I am concerned about potential side effects or set-backs in MND symptoms.
Many thanks-
Fiona