this happened this morning

[kfletcher]

This morning when my husband got me out of bed and put me on the commode....for about 10-15 seconds I couldn't talk and my right hand I couldn't straighten or move my thumb, pointer 9 middle finger. The ring finger and pinkie I could move but not straighten out....I did feel a bit fuzzy or foggy...it scared me and my husband witnessed it, I played it off that maybe I slept on it funny. He said well your eyes are opened really wide and watering, I didn't notice that...now along with the diaphragm spasms, I'm getting really scared, what should I do? He wanted me to call Neuro, but honestly I'm scared.

 

[Nikki J]

I would go to the ED. If not call your neuro ASAP. Honestly it sounds like a TIA. Do not mess around with this

 

[MaxEidswick]

>I would go to the ED. If not call your neuro ASAP. Honestly it sounds like a TIA. Do not mess around with this

Ditto that! the neuro before er imo

 

[kfletcher]

Ok, this may sound stupid, but what is a tia?

 

[Nikki J]

Transient ischemic attack. Like a stroke but no permanent damage. It is a big warning. PLEASE call/ go right away. It sounds just like one. Hope it is not but do not chance it

 

[kfletcher]

Yeah I just looked that up...now really scared! Will call Neuro...ty

 

[kfletcher]

Ok thought I'd update after my Neuro call....he wants to up my dosage of klonopin and he said the foggy, fuzzy head, unable to speak and problem with my hand isn't associated with my PLS and if it happens again to go to my primary....it seems to me he should be concerned, is it time for a new Neuro?

 

[MaxEidswick]

2nd opinion by ALS neuro can't hurt ...

 

[Nikki J]

Do you have a good pcp? I would call him/her and ask what they think. Your neuro has obviously examined you and knows your risk factors. I don't think though that my neuromuscular doctor listens to my carotids when I go for visits. Think she leaves non ALS issues to my pcp unless I have an immediate issue and the potential worry here for you is not MND related

 

[kfletcher]

Ok thanks...just figured if it was something possibly like a tia, he'd have some concern. He is the Neuro ALS specialist in Knoxville, but I haven't been happy with him since my 1st appt, so I think I'm gonna talk to MDA about other Neuro s in the area. Most of the time he doesn't even assess me at all, just asks what's been going on & keeps upping my baclofen, pain meds & now klonopin. I had a emg almost a month ago & they still haven't even looked at the results, told me maybe next week he'll get to them.

 

[Tractor Boy]

Kfletcher, sounds like your neuro is a flaming a$$hole! Drop him like a hot potato and find one you are comfortable with. NOW! There's no excuse for not having EMG results almost immediately. Nobody deserves that type of service... TB

 

[MaxEidswick]

>Kfletcher, sounds like your neuro is a flaming a$$hole! Drop him like a hot potato and find one you are comfortable with. NOW!

Ditto that!

 

[gooseberry]

The neuro that did my husbands emg talked to us immediately after doing it.

 

[kfletcher]

Yeah I'd have to agree, not happy with him. I talked with my visiting nurse & she feels the same way about him at this point. MDA had suggested to me before they'd like me to go to the ALS Clinic in Nashville, it is a 6 hour ride & would require an overnight or 2, but think at the next support group meeting I'm gonna discuss them helping me to get in, plus talk with everyone else about what Neuro's they are using. Of course I need ALS Neuro & am the only one at the sport group to have that. There is an older gentlemen that goes who lost his wife to ALS, maybe they used someone else.

 

[Tractor Boy]

I would certainly think they have ALS/PLS Neurologists and ALS Clinics in Knoxville. I Googled it and literally dozens of neuros popped up. Not all specialize in MND's but just saying. If you are not handy with internet searches, find someone who is and discover what's out there more locally. Just trying to help-TB