- Joined
- Aug 28, 2013
- Messages
- 2,872
- Reason
- PALS
- Diagnosis
- 12/2018
- Country
- US
- State
- NC
- City
- Get Real
The so often long diagnostic journey of certain MNDs can be so seemingly drawn out I can’t help but wonder sometimes if it isn’t part of some iniquitous plan. Somebody gets paid (by you or your insurance or both) for every office visit and test. For example, there is a test (I won’t mention the name or it will show up in future Threads) with findings of the Primary Motor Cortex that is a near 70% indicator of Primary Lateral Sclerosis. Many Neuros won’t order it… for some reason. It is expensive. But it can hasten the PLS requirement criteria of 3 to 5 years of exclusion and observation with some affirmation to a confirmed diagnosis sooner. (But, as many have written before, it is a ‘must’ to been seen by a Neuro who specializes MNDs to have it happen). So… why isn’t it a standard test for the presentation of Upper Motor Neuron Disease? Generally this test is ‘sometimes’ ordered after the exclusion of other possibilities. I was told there has to be significant evidence of progression before the test would be ordered. I feel mine was like the period at the end of a very long sentence that could have been much shorter. Hmmm… Is it really a matter of checking off the long list of diagnostic exclusion or… Again, just my opinion.
PS. Some Neurologists follow this Forum in their off time... sorry Docs.
PS. Some Neurologists follow this Forum in their off time... sorry Docs.