Chris3274
Active member
- Joined
- Apr 7, 2014
- Messages
- 38
- Reason
- Other
- Diagnosis
- 01/2014
- Country
- US
- State
- Ca
- City
- Fallbrook
I walk with the aid of a rollator due to spasticity and now I am experiencing hand weakness
and a bit of slowness when talking. My question is; when bulbar symptoms increase am I
going to see muscle sagging in my face? A visual change in my appearance?
And I know PLS progression is much slower than ALS but if one has already lost the ability to walk and will eventually lose the ability to talk, swallow, turn over in bed or hold a fork what does one do all day? Can you enjoy life in any capacity? Enjoy a movie, a pet, a new
couch?
My other concerns are: Will I be a candidate for the pump even though I don't take a high dosage of baclofen? I take 5 mg of baclofen at bed time and no more. This low dosage stops my legs from jerking. I want to avoid the side effects of increased dosages as long as possible. and....... does the pump help with swallowing difficulties?
Thanks for all the help
and a bit of slowness when talking. My question is; when bulbar symptoms increase am I
going to see muscle sagging in my face? A visual change in my appearance?
And I know PLS progression is much slower than ALS but if one has already lost the ability to walk and will eventually lose the ability to talk, swallow, turn over in bed or hold a fork what does one do all day? Can you enjoy life in any capacity? Enjoy a movie, a pet, a new
couch?
My other concerns are: Will I be a candidate for the pump even though I don't take a high dosage of baclofen? I take 5 mg of baclofen at bed time and no more. This low dosage stops my legs from jerking. I want to avoid the side effects of increased dosages as long as possible. and....... does the pump help with swallowing difficulties?
Thanks for all the help