Suzannah
Distinguished member
- Joined
- Mar 19, 2014
- Messages
- 132
- Reason
- DX MND
- Diagnosis
- 08/2014
- Country
- Uni
- State
- TEXAS
- City
- Deep in the Heart of
Hi all,
So I met with an orthotist person, and he said I need an AFO for my right leg. It's the kind that goes all the way under the foot, and all the way up the back of the calf and velcros below the knee. Due to spasticity issues, my foot rolls under and turns in, so I end up walking on the side of my foot.
Anybody want to tell me about their AFOs? Like ... do you have them for one or both legs? How much of the day do you wear them? Can you drive in them? Climb stairs? What do you do about shoes? And socks? How did you get used to wearing them in public? Do they hurt? Do they help?
I'm trying to figure out the logistics of how this is going to work. I'm in and out of shoes 5-6 times a day and am barefoot most of the time, except when at work. I hate socks. I hate shoes! I live in really hot South Texas! And I live upstairs. And I need to dress decently for work. And I'm nervous about "announcing" my disorder (HSP) since up till now I've been able to keep it relatively on the DL. My friends/family know, but my clients/teammates/classmates don't.
I know these really are small issues in the greater scheme of things, and I'll get over 'em. But if anybody has any advice, I'd love to hear it!
Thanks,
--Suzannah
So I met with an orthotist person, and he said I need an AFO for my right leg. It's the kind that goes all the way under the foot, and all the way up the back of the calf and velcros below the knee. Due to spasticity issues, my foot rolls under and turns in, so I end up walking on the side of my foot.
Anybody want to tell me about their AFOs? Like ... do you have them for one or both legs? How much of the day do you wear them? Can you drive in them? Climb stairs? What do you do about shoes? And socks? How did you get used to wearing them in public? Do they hurt? Do they help?
I'm trying to figure out the logistics of how this is going to work. I'm in and out of shoes 5-6 times a day and am barefoot most of the time, except when at work. I hate socks. I hate shoes! I live in really hot South Texas! And I live upstairs. And I need to dress decently for work. And I'm nervous about "announcing" my disorder (HSP) since up till now I've been able to keep it relatively on the DL. My friends/family know, but my clients/teammates/classmates don't.
I know these really are small issues in the greater scheme of things, and I'll get over 'em. But if anybody has any advice, I'd love to hear it!
Thanks,
--Suzannah