Hi Cammarak,
Welcome to the forum -- also very sorry you had to join.
At one time or another, most of the PLSers here have posted their need to monitor their activities very closely, to prevent overdoing things -- half a day of moderate physical work or activity can put most of us on the shelf for a few days (and more). The important thing is that you learn to "listen" to your body -- and stop when you have to.
Up to a few years ago, I traveled extensively (not uncomplicated or unproblematic, but I managed). Now, I work from home exclusively, because there is no possible way that I could work away from home any longer, as the impact of the disease (in terms of symptoms) has become unpredictable. My current job allows me the flexibility to do what I can when I can (still not always easy).
I was shocked to read your morphine/ end-of-life story -- I can only hope that the doc in question confused PLS with ALS. Assuming you do have PLS, you'll find that you need to educate MOST docs/ specialists that you may see in the future, as most are not familiar with PLS (and this includes many "small town" neurologists!). I would highly recommend that you see a "neuromuscular specialist" - if you've not yet done so.
The Medscape site is, I think, provides a truly excellent overview of PLS. See:
Medscape: Medscape Access
Be sure you navigate through all tabs on the left-hand menu (Background, Etiology, etc.) as well as those at the top as well (Overview, Presentation, etc).
From your posting, while you've noted more rapid progression recently, your symptoms (10 years) do seem to be following a PLS track. Speaking only from my personal experience, I find that while my symptoms have clearly worsened over time, the progression tends to accelerate at times, while at others it is slow and insidious. But always, the general trend is one of progression, worsening, and widening of symptoms (mine have moved from both legs to low back, neck, shoulders, and arms).
Mike