Elliemae
New member
- Joined
- Aug 23, 2014
- Messages
- 7
- Reason
- PALS
- Diagnosis
- 04/2013
- Country
- CA
- State
- ON
- City
- Windsor
Hi everyone, I've been reading some of the posts here and can relate to the frustrations with this disease. On one hand we are lucky we don't have ALS but we have a longer life to live with poor quality and lack of independence. On top of that we are at the bottom for any clinical trials. I read with interest about trials in Massachusetts on the "brainstorm" website. It certainly looks promising but they're only accepting U.S. residents in the Massachusetts area with ALS as volunteers. Thank God the ice bucket challenge went viral and money raised could lead to more trials worldwide. There's still hope for us