Suzannah
Distinguished member
- Joined
- Mar 19, 2014
- Messages
- 132
- Reason
- DX MND
- Diagnosis
- 08/2014
- Country
- Uni
- State
- TEXAS
- City
- Deep in the Heart of
Hi all,
Well, after almost 3 months of waiting, my evaluation appointment is finally in sight. I will be heading to Houston next week to have all my testing done. But in the meantime, *this* week I'm on vacation in Colorado with my family. It is the first real vacation I hsve taken in at least 3.5 years.
I was worried about being able to keep up, but so far so good. Yesterday we hiked for three hours, two straight uphill and one hour straight downhill. I've been an athlete my entire life and am very fit, but I have bad spasticity and foot drop in both legs and was worried about tripping. My legs started coming unhinged towards the end, but I didn't fall.
The thin air and the cool temps (I'm from Texas) have been doing really good things for my body, and my chronic pain issues have eased up. I've been having to take a ton of sleeping medicine lately because of pain and spasticity, but here I've only needed to take my nightly Baclofen.
The best part is that being up here has allowed me to forget all of the rest of this stuff for a little while. I've been thinking about motor neuron diseases pretty much every moment of the day since I first went to the neurologist back in Feb. To be able to disengage, even just for a little while, is a great gift. I figure after next week, I may have the rest of my life to worry about it. Every now and then I start to panic a little when I think that this might be "the last time! " I might be able to do something, but then I remind myself what you all here say all the time, just to enjoy this time and the abilities that I still have now.
Suzannah
Well, after almost 3 months of waiting, my evaluation appointment is finally in sight. I will be heading to Houston next week to have all my testing done. But in the meantime, *this* week I'm on vacation in Colorado with my family. It is the first real vacation I hsve taken in at least 3.5 years.
I was worried about being able to keep up, but so far so good. Yesterday we hiked for three hours, two straight uphill and one hour straight downhill. I've been an athlete my entire life and am very fit, but I have bad spasticity and foot drop in both legs and was worried about tripping. My legs started coming unhinged towards the end, but I didn't fall.
The thin air and the cool temps (I'm from Texas) have been doing really good things for my body, and my chronic pain issues have eased up. I've been having to take a ton of sleeping medicine lately because of pain and spasticity, but here I've only needed to take my nightly Baclofen.
The best part is that being up here has allowed me to forget all of the rest of this stuff for a little while. I've been thinking about motor neuron diseases pretty much every moment of the day since I first went to the neurologist back in Feb. To be able to disengage, even just for a little while, is a great gift. I figure after next week, I may have the rest of my life to worry about it. Every now and then I start to panic a little when I think that this might be "the last time! " I might be able to do something, but then I remind myself what you all here say all the time, just to enjoy this time and the abilities that I still have now.
Suzannah