Chris3274
Active member
- Joined
- Apr 7, 2014
- Messages
- 38
- Reason
- Other
- Diagnosis
- 01/2014
- Country
- US
- State
- Ca
- City
- Fallbrook
Hi:
I was accepted in January, 2014, to the Undiagnosed Diseases Program at the National Institute of Health where I got a diagnosis. PLS. This was after 5 years of extensive testing on the outside. My greatest difficulty is walking. I fall less now because I use a rollator. I broke my clavicle last thanksgiving morning and that made me sweetly reasonable, as far a using an aid to help with walking. I am still in disbelief that a once very active, enthusiastic, energetic YOUNG 60 year old, who played tennis 4x a week and sprinted, and faced no challenge for highly physical activities has become an old woman, almost over night. Pls is so rare that odds are I would have a better chance at winning the lotto, almost.
I am still working. Sing with the locale chorale. Sing with an octet and quartet. Love
my husband, our home and all our pets. Have family that we spend time with, mostly
on holidays. When I can't put my pant legs on or I bang the rollator into my white door
moulding I get so darn mad and then I tell my husband "just think, these are my good days".
I am afraid of my future and what difficulties lie ahead. I wake each morning and that
fear is what gets me out of bed. I look at people walking and running. I am amazed
at the ease with which they can walk. How it is taken for granted. I go through bouts
of self pity and anger because I have no control over what happens to my body now.
I feel jipped.
So, I go to Yoga 2x weekly. Going to physio therapist tomorrow. Tai Chi on Fridays.
And I pray and go to church. I am not accepting this. I am remodeling the bathroom
and cleaning and sealing the laundry room grout. And I am going to start some small
art project. And re-panel a room divider with fabric I bought from a recent estate sale.
I am continuing with the projects I have always loved doing, with the exception of the physical activities. I get things done but at a snails pace.
I am always waiting for the other shoe to drop.
I spent years in AA and with the help of other sober alcoholics I was able to get sober
and have stayed that way for 32 years. I know the power of people helping people so
it is normal for me to join a Pls support group.
I was accepted in January, 2014, to the Undiagnosed Diseases Program at the National Institute of Health where I got a diagnosis. PLS. This was after 5 years of extensive testing on the outside. My greatest difficulty is walking. I fall less now because I use a rollator. I broke my clavicle last thanksgiving morning and that made me sweetly reasonable, as far a using an aid to help with walking. I am still in disbelief that a once very active, enthusiastic, energetic YOUNG 60 year old, who played tennis 4x a week and sprinted, and faced no challenge for highly physical activities has become an old woman, almost over night. Pls is so rare that odds are I would have a better chance at winning the lotto, almost.
I am still working. Sing with the locale chorale. Sing with an octet and quartet. Love
my husband, our home and all our pets. Have family that we spend time with, mostly
on holidays. When I can't put my pant legs on or I bang the rollator into my white door
moulding I get so darn mad and then I tell my husband "just think, these are my good days".
I am afraid of my future and what difficulties lie ahead. I wake each morning and that
fear is what gets me out of bed. I look at people walking and running. I am amazed
at the ease with which they can walk. How it is taken for granted. I go through bouts
of self pity and anger because I have no control over what happens to my body now.
I feel jipped.
So, I go to Yoga 2x weekly. Going to physio therapist tomorrow. Tai Chi on Fridays.
And I pray and go to church. I am not accepting this. I am remodeling the bathroom
and cleaning and sealing the laundry room grout. And I am going to start some small
art project. And re-panel a room divider with fabric I bought from a recent estate sale.
I am continuing with the projects I have always loved doing, with the exception of the physical activities. I get things done but at a snails pace.
I am always waiting for the other shoe to drop.
I spent years in AA and with the help of other sober alcoholics I was able to get sober
and have stayed that way for 32 years. I know the power of people helping people so
it is normal for me to join a Pls support group.