Mike in Maine
Distinguished member
- Joined
- Oct 18, 2013
- Messages
- 244
- Reason
- PALS
- Diagnosis
- 10/2013
- Country
- US
- State
- PA, No longer live in ME
- City
- Pocono's
Went for monthly visit to the Doctor yesterday, he wants me to quit working. Not because I’m physically unable to perform at work or there is a safety issue, it is because it interferes with my medicine schedule. Granted he has a point, it I take the amount of Baclofen and Tizenidine on the schedule he wants I’m pretty much comatose, and need a nice long nap about mid-day (nothing wrong with a nice nap). The spasticity has gotten real bad, like so bad that by the end of the day my legs hurt so bad all I want to do is go to bed. I feel like my whole body is a large knot. Right now I’m taking all the Baclofen he wants to me take 30 mg X 3 a day except I take 20mg followed a couple hours later with 10mg. Can’t do the Tizenidine except at night, just kicks my tail end. Not ready to stop working, seems like one of the few things I still control, as much as I complain I still enjoy it. So now we are talking about the pump so I can stay working, to finally get to the 2 questions of this ramble. For those of you no longer working, how did you deal with it? I’m in great fear of that day! Those who have had any experience with the pump, how did it go? Ok 3 questions, does any of this make sense?
Thanks
Mike
Thanks
Mike