Nikki J
Moderator
- Joined
- Mar 22, 2012
- Messages
- 16,376
- Reason
- PALS
- Diagnosis
- 04/2014
- Country
- US
- State
- MA
- City
- Boston
Is anyone here in it? It is observational so no intervention. See it has been ongoing for years but still recruiting.
It looks like the physician is Mary Kay Floeter who specializes in PLS. I am in a NIH genetic ALS study. If it is run the same way they pay your travel,hotel and give you some money for meals. With ALS they also pay for travel for a companion/ caregiver. If you are in the US and can travel you might want to look into it
It looks like the physician is Mary Kay Floeter who specializes in PLS. I am in a NIH genetic ALS study. If it is run the same way they pay your travel,hotel and give you some money for meals. With ALS they also pay for travel for a companion/ caregiver. If you are in the US and can travel you might want to look into it