- Joined
- Aug 28, 2013
- Messages
- 2,869
- Reason
- PALS
- Diagnosis
- 12/2018
- Country
- US
- State
- NC
- City
- Get Real
I think (my opinion) those who are dealing with all the signs of PLS but linger without a diagnosis need to hit their neurologists with point blank hard questions. Four or five appointments within a year and then the next year too with tests that indicate something is going on but the neuro still won't make the call just isn't right. If you have an appointment (that is maybe your 6th, 7th or 8th) and still no diagnosis and the neuro says at the end of the appointment, "Stay on the Baclofen and I'll see you again in three months." Bingo! There's the time for the point blank questions. Like (brutally honest), "What the hell difference will that make? I've seen you 7 times, nothing has improved, I've progressed, you increased my meds, my tests indicate something is going on and you're still shrugging your shoulders. With all due respect Dr. Whoever, what could three more months from now help you make up your mind? What don't you see in this appointment that makes you hesitant to make a diagnosis.? Tell me what's missing. Again, with all due respect Dr. Whoever I'm at a point I'd like some answers."
Remember, he's being paid to see you... by you! It's your money! Too many appointments I sat there and nodded my head with the attitude, "Well... he's the doctor." Go for it.
Remember, he's being paid to see you... by you! It's your money! Too many appointments I sat there and nodded my head with the attitude, "Well... he's the doctor." Go for it.