Jammed up

[Bad Balance]

Today I realized that I should no longer drive...
My legs are going on me
Wheelchair arrived and I hate it
I am becoming incontinent

All within the last 2 weeks

Perhaps with better sleep things will improve...I hope so
Right now I want to curl up and not come out....have to though or I pee in the bed...lol

 

[Schmutz]

Oh no! I feel awful for you - but I've also wondered if other people have periods of rapid decline.... like I've had.....

I have found that for me, physical therapy and walking a nearby high school track (once around is all I can do) seems to help my legs somewhat. My insurance won't pay for any more therapy this year - so I'll try doing some exercises at home.

I still drive - but only close to home. Any new surroundings can throw me off completely!
I take Detrol to help control my bladder...

It helps to have this place to come and "talk"about this.

 

[billbell52]

With the general slow progression of PLS it is often difficult to detect changes. Then all of a sudden you realize that a lot has changed over a few months. I had the same thing my walking. Over 24 months I had a few problems with going down stairs, started using a cane, then walker, then scooter, then PWC or scooter. Hard pill to swallow.

I also gave up driving when I started using scooter. My reflexes were impacted and I no long felt safe. I could have extended my driving for another year or so by using hand controls but I realized I would be unsafe with reduced arm reflexes.

Can you elaborate on why you are unhappy with PWC?

 

[Flyby]

With the bladder problem, I had to go to a catheter right away. After 2 1/2 months with a Foley and constant infections I went with a Supra Pubic one and it is working wonderfully. I can drink what I want when I want without worrying about where the bathrooms are or whether I'll have a flood.
As for the PWC practise makes for better driving. so hang in there.

 

[wendya432]

Sorry to hear about your progression.

I do seem to notice the same thing with progression. I don't really notice the slow progression until I realize I can't do something anymore. I used to think it happened like bam, big change. But I've realized I'm able to ignore the slow progression until it really impacts me, or speeds up a little and I just can't brush it aside anymore.

I hope you get used to your WC, maybe it just has a learning curve before you become comfortable with it.

 

[Bad Balance]

The wheelchair is a Permobil 300. Nothing wrong with it....just complaining.

The entire post should be moved to "Rants and Raves"

 

[olly]

Hi jerry.
Sorry your having such a hard time of it,its ok to complain if your feeling really down.
I'm hoping your feeling a little better in your self.
I too am having difficult times.....if I did a thread on rant and raves it would be 50 pages long and david would close it before I got any replies lol.
We just have to brush ourselves down and get on with it.....can't do anything else.
BIG (((HUGS))) Jerry.