PLS webinar

[Nikki J]

The Northeast ALS consortium (NEALS) webinar on August 26th is on UMN disease. You can find a link on their website to register. You need a phone line as well as computer I think. ( at least that has been the case with their last couple of webinars) the webinars are usually excellent

 

[Bad Balance]

Thanx....sounds of interest

 

[Schmutz]

I'm anxious to see what they have to say! Thanks for the notice.

 

[olly]

Thanks nikki for posting this.
I still have last years saved in my favourites,it was very intresting.
Look forward to this years,they do post it online after the event?
I did not catch it live but watched it after.

 

[Schmutz]

Well, those doctors basically told me not to take Ampyra. 'Doesn't do anything for PLS.
That only made me feel better about taking just one tablet daily instead of the prescribed 2. My sleep schedule is too irregular to guarantee 12 hours between doses. I swear - it has helped me walk better.

But this is only day 4 so I will reserve judgement.