Stiff muscles behind the eyes

[prosons]

Hi All
I have "upper motor dominant" ALS. From early on in my diagnosis I noticed that my eyes are being pushed out a bit and as I push them in I feel substantial resistance. This is particularly true in the morning. Does spasticity effect your eyes too?

Also, I recently took Prednisone and found that it reduced my spasticity quite a lot, hs anyone else had that experience with Prednisone?

Thank you for your response, I sincerely appreciate it!

Frank

 

[Nighthawk]

I might be wrong but, I haven't heard that the muscles of the eyes are affected by PLS or other MND.

About Prednisone use to treat spasticity, I didn't know about it but, if it's working for you, then that's good.


NH

 

[prosons]

Thank you NH!

Frank

 

[Schmutz]

I've been diagnosed with PLS and I often wake up with the feeling that something is wrong with my eye sockets. Don't have any advice - mine gets better as the day goes on.

 

[prosons]

Hi can you be more specific? What exactly are you feeling with your eye sockets in the morning?

Thank you
Frank

 

[Schmutz]

Well, it's hard to describe. Let me put it this way, are you ever aware of your eye sockets? I think I can feel them. All the way around. It's strange and a little scary, as though my skeleton were connected to my sensory system.....

 

[Moonwolfy]

One of my first symptoms at onset was a feeling that my eyes especially my left eye felt like it was twitching or moving back and forth in the eye socket. I get that symptom often but others say they can't visibly see my eyes moving around. But it's such a bizarre feeling. I've had my eyes checked as in the beginning I thought maybe it was MS and everything is normal. I know I've heard and researched that a lot of symptoms that I have are supposedly not PLS related but I feel like since it's so rare and everyones body is different that it's possible that the doctors just don't know everything. So yes I totally understand the eye stuff

 

[Nighthawk]

I have read in the past that eye stiffness is more related to MS than it is to MND.
I could be wrong but that is what I've read.

NH