LinCan
Active member
- Joined
- Sep 25, 2012
- Messages
- 67
- Reason
- PALS
- Diagnosis
- 08/2013
- Country
- CA
- State
- Ontario
- City
- Sault Ste. Marie
Hello everyone. I haven't posted for a while, but have been reading and learning. I really appreciate all the kind knowledgable people who contribute.
I was diagnosed as probably PLs, maybe Hsp last fall with UMN symptoms in legs, signs of increased reflexivity in arms, clear MRIs, and a clear EMG in Oct. 2012. I find my spasticity in legs is worse after sleeping and that does not surprise me. What is starting to worry me is that when I awake with a dry mouth and try to swallow, my jaw kind of jerks or shudders like a sort of "jaw clonus". Does this mean symptoms are moving to bulbar region? if so, this seems to be pretty fast progression for PLS. (Symptoms started I think around3 years ago.)
Any thoughts or advice would be greatly appreciated. I have an appointment with an MND specialist in London ON in April, and will have another EMG then. It is a seven-hour journey, but will be worth it. I'm just trying to stay as calm as can be till then.
Thank you again.
I was diagnosed as probably PLs, maybe Hsp last fall with UMN symptoms in legs, signs of increased reflexivity in arms, clear MRIs, and a clear EMG in Oct. 2012. I find my spasticity in legs is worse after sleeping and that does not surprise me. What is starting to worry me is that when I awake with a dry mouth and try to swallow, my jaw kind of jerks or shudders like a sort of "jaw clonus". Does this mean symptoms are moving to bulbar region? if so, this seems to be pretty fast progression for PLS. (Symptoms started I think around3 years ago.)
Any thoughts or advice would be greatly appreciated. I have an appointment with an MND specialist in London ON in April, and will have another EMG then. It is a seven-hour journey, but will be worth it. I'm just trying to stay as calm as can be till then.
Thank you again.