I feel kind of at home with this group. ALS didn't seem to fit cuz I've been on a slowly progressive decline for 13-15 years now. I was in my early 20's when I started limping on my r. side. I'm 39 and have been scooter bound for 7 years. I wish I had done more when I could. But the progression was so insidious. I didn't know I would be almost completely disabled so young. My arms/hands still work, thank God. But are getting weaker. I notice I cry at anything.
I'm seeing a "electro diagnostic" neuro on Wed... First neuro in 3 years. Hopefully I'll get some answers. It's weird because I can only barely move my toes now. Can't walk at all but not completely paralyzed. It's hard being undiagnosed so long. I just want to know what I'm up against. I'm such a tough case to diagnose my last neuro refused to see me again!
Praying for answers. Thanks for listening.
Kate
I'm seeing a "electro diagnostic" neuro on Wed... First neuro in 3 years. Hopefully I'll get some answers. It's weird because I can only barely move my toes now. Can't walk at all but not completely paralyzed. It's hard being undiagnosed so long. I just want to know what I'm up against. I'm such a tough case to diagnose my last neuro refused to see me again!
Praying for answers. Thanks for listening.
Kate