CindyRN
Distinguished member
- Joined
- Jul 5, 2012
- Messages
- 110
- Reason
- PALS
- Diagnosis
- 01/2012
- Country
- US
- State
- Montana
- City
- Great Falls
Hello...thought I would introduce myself. I have been reading this forum for several months and have learned so much from you all. I am 46, my symptoms started with left hand thenar atrophy. So I went to an ortho and he said basal joint arthritis so I never thought anymore about it. Then...one day at work I was running to a code and pulled my left calf muscle which never healed and turned into foot drop.
Had first EMG in October which I was diagnosed with mixed motor/axonal demyelinating polyneuropathy. Had to switch Neurologist in January since first one was not covered by my insurance. Second EMG...diagnosed with probable ALS or Multiple Radiculopathies. I have been unable to make it to an ALS clinic...waiting on Medicare. Thank goodness SSDI and VA came through rather quickly.
I do have 2 questions which I am curious about....
1. Regarding pain....has anyone experienced terrible thoracic pain?
2. Atrophy progression...is it usually in a uniform progression such as distal to proximal? Mine is patchy and missed my right calf all together. Possibly because I have a partial conduction block in that calf? With my left and right hands....they are atrophied then jumps to my shoulders. just curious?
Thanks for any input!
Cindy
Had first EMG in October which I was diagnosed with mixed motor/axonal demyelinating polyneuropathy. Had to switch Neurologist in January since first one was not covered by my insurance. Second EMG...diagnosed with probable ALS or Multiple Radiculopathies. I have been unable to make it to an ALS clinic...waiting on Medicare. Thank goodness SSDI and VA came through rather quickly.
I do have 2 questions which I am curious about....
1. Regarding pain....has anyone experienced terrible thoracic pain?
2. Atrophy progression...is it usually in a uniform progression such as distal to proximal? Mine is patchy and missed my right calf all together. Possibly because I have a partial conduction block in that calf? With my left and right hands....they are atrophied then jumps to my shoulders. just curious?
Thanks for any input!
Cindy