Brother Rock
Active member
- Joined
- May 6, 2012
- Messages
- 44
- Reason
- DX UMND/PLS
- Diagnosis
- 04/2012
- Country
- US
- State
- IN
- City
- Bloomington
A little over 4 years ago (2008) I started with a cold foot. Well at least it "felt" cold but not to the touch. No reason found.
My next problem was my foot felt REALLY cold one day and I took my sock and shoe off and my foot was ghost white and I could not see any blood vessels. It was cold to the touch. This occurs on an off but not too often and a good foot rub usually restores to blood flow.
I start to experience numbness and tingling in my right foot and that is still happening to this day.
I saw a neurologist in 2009 and started having various MRIs done starting with the pelvis and right hip. Nothing found.
2010 had a CT scan of my lower body - nothing found, X-Ray nothing found
2011 Brain and Lumbar still for numbness and tingling in my right foot.- nothing found as usual. EMG - nothing
Sep 2011 started physical therapy for a month and now my left foot is starting to feel like my right foot with numbness and tingling. My right leg was between 26% to 53% weaker than my left leg but improved some strength but soon I lost most of that strength.
2012 My doctor sent me to a Neurologist. Spine MRI and X-Ray possible problem with lower back so I was given a epidural which did nothing for me.
Finally decided to go to Cleveland clinic and after more MRIs, X-Rays and EMG+ they said I had PLS.
I found this site and after seeing most of you have very bad symptoms and I do not have anything but weakness in my right thigh but not the calf. I cannot tap my right foot. I have tingling and numbness during the day which seems to get worse in the evenings especially the tiredness. No pain, no cramping, no spasticity.
Has anyone one of you started like this? I need to know as when I see what all of you are going though I find it very hard to believe I have PLS. Please help me! :-(
My next problem was my foot felt REALLY cold one day and I took my sock and shoe off and my foot was ghost white and I could not see any blood vessels. It was cold to the touch. This occurs on an off but not too often and a good foot rub usually restores to blood flow.
I start to experience numbness and tingling in my right foot and that is still happening to this day.
I saw a neurologist in 2009 and started having various MRIs done starting with the pelvis and right hip. Nothing found.
2010 had a CT scan of my lower body - nothing found, X-Ray nothing found
2011 Brain and Lumbar still for numbness and tingling in my right foot.- nothing found as usual. EMG - nothing
Sep 2011 started physical therapy for a month and now my left foot is starting to feel like my right foot with numbness and tingling. My right leg was between 26% to 53% weaker than my left leg but improved some strength but soon I lost most of that strength.
2012 My doctor sent me to a Neurologist. Spine MRI and X-Ray possible problem with lower back so I was given a epidural which did nothing for me.
Finally decided to go to Cleveland clinic and after more MRIs, X-Rays and EMG+ they said I had PLS.
I found this site and after seeing most of you have very bad symptoms and I do not have anything but weakness in my right thigh but not the calf. I cannot tap my right foot. I have tingling and numbness during the day which seems to get worse in the evenings especially the tiredness. No pain, no cramping, no spasticity.
Has anyone one of you started like this? I need to know as when I see what all of you are going though I find it very hard to believe I have PLS. Please help me! :-(