wellington
Active member
- Joined
- Feb 8, 2012
- Messages
- 40
- Reason
- Learn about ALS
- Country
- AUS
- State
- Queensland
- City
- Brisbane
Hello all
I haven't yet posted much, largely because I'm increasingly doubtful I have ALS. Reasons being, I have some autonomic symptoms, I have pain and recent (quite dramatic) speech and swallowing symptoms have at least for now 70% abated AND while i get weaker and weaker I've now been ill for almost 2 years. Also negative EMG. MS ruled out.
I'm wondering about PLS. Do sufferers experience speech\swallowing symptoms that come and go, or does the universal ALS rule of things just getting worse apply with PLS too? And do PLSers get autonomic disfunction?
My symptoms - right arm almost doesn't work any more, drop foot (left), increasing weakness (I use a cane), sleep disturbance, dramatic, but now intermittent speech & swallowing issues, twitches in affected limbs, weak trunk muscles (left), stiffness, and an out-of-this world painful thigh (left). As well, I am sick every day from about lunch time. I suffer from fatigue and temperature disregulation.
Neuro says I have positive Babinski, tremor, myoclonic jerks, and reduced fine motor skills and hyperreflexia. Multiple System Atrophy is also possible. I have tongue weakness confirmed by speech pathologist.
You guys are amazing and I am a little sheepish about taking your time, but I'd be so grateful for help/advice. I am almost at the point of not being able to care for my 5 year old daughter and have no family support, so a little bit frightened.
Thank you
Lilly
I haven't yet posted much, largely because I'm increasingly doubtful I have ALS. Reasons being, I have some autonomic symptoms, I have pain and recent (quite dramatic) speech and swallowing symptoms have at least for now 70% abated AND while i get weaker and weaker I've now been ill for almost 2 years. Also negative EMG. MS ruled out.
I'm wondering about PLS. Do sufferers experience speech\swallowing symptoms that come and go, or does the universal ALS rule of things just getting worse apply with PLS too? And do PLSers get autonomic disfunction?
My symptoms - right arm almost doesn't work any more, drop foot (left), increasing weakness (I use a cane), sleep disturbance, dramatic, but now intermittent speech & swallowing issues, twitches in affected limbs, weak trunk muscles (left), stiffness, and an out-of-this world painful thigh (left). As well, I am sick every day from about lunch time. I suffer from fatigue and temperature disregulation.
Neuro says I have positive Babinski, tremor, myoclonic jerks, and reduced fine motor skills and hyperreflexia. Multiple System Atrophy is also possible. I have tongue weakness confirmed by speech pathologist.
You guys are amazing and I am a little sheepish about taking your time, but I'd be so grateful for help/advice. I am almost at the point of not being able to care for my 5 year old daughter and have no family support, so a little bit frightened.
Thank you
Lilly