chrisroski
Active member
- Joined
- Apr 12, 2012
- Messages
- 93
- Reason
- PALS
- Diagnosis
- 01/2012
- Country
- US
- State
- Pa
- City
- Philadelphia
Hi I am new to this forum. I was diagnosed in January with Primary Lateral Sclerosis. It has greatly affected my speech to the point that you can barely understand me sometimes. Eating is
not too bad, just have to cut in small pieces and eat very slowly, however, liquids seems to be more difficult, coming out my mouth & sometimes my nose. I still have motion in my arms and legs. I was put on Rilulex to slow the progession down, but it is not agreeing with me to well.
I have episodes of severe crying and fatigue and get very depressed. I know that this is going to get worse and don't know what I will do when I can't talk anymore. Does anyone know what devices there are for speech problems & how do you pay for these things. My family has been very supportive, but I know it will get harder on them. I hope that this forum will help, cause typing is really my only means of communication
not too bad, just have to cut in small pieces and eat very slowly, however, liquids seems to be more difficult, coming out my mouth & sometimes my nose. I still have motion in my arms and legs. I was put on Rilulex to slow the progession down, but it is not agreeing with me to well.
I have episodes of severe crying and fatigue and get very depressed. I know that this is going to get worse and don't know what I will do when I can't talk anymore. Does anyone know what devices there are for speech problems & how do you pay for these things. My family has been very supportive, but I know it will get harder on them. I hope that this forum will help, cause typing is really my only means of communication