At the begining I didn't have much but as I progressed into a spastic mess, I started poping tendons and injuring myself. My muscles always ache hard at the end of a day at the beginnig, but now they hurt 24/7 unless I just lay around and do nothing for a few days. Well I cannot lay around and do nothing! The more activity for me seems to aggrevate the pain level. I have some arthritis, but its not that bad or painful compared to the constant ache. And now that my feet have started to deform because of spaticity and weakened muscles, they are very painful to walk on. Some days I just cannot walk at all on them. I also have alot of pain in my hips, especially if I walk alot or sit upright alot.
I live daily on about a 6 or 7 on the pain scale. Then if it hits 8 I take a norco or ultram. That doesn't remove all the pain, it just brings me back down to a 6 or 7. If I have a muscle that is inflamed from over use, I take 3 ibuprophen. That usually cuts the pain pretty good. My thought on the pain meds is that I refuse to take them daily. Since its a proven fact that your body can grow tolerant of them and you keep having to up the dosage to get the same effect as you first did. Thus, I have learned through the years to manage my pain as much as possible without the meds, and take them when I really need it.
Sometimes I use topical creams such as bengay or mineral ice on muscles that are very knotted and muscle relaxer did not help unknot them. Just massage that one those really painful knots and you dont feel them after a few minutes. My doc is always amazed at how much pain I tollerate. He and the pain doc wanted to put me on a patch a few years back. But I know from watching others people that are in my extended family, what that means. It never stops there. My sis went from taking 4 narcotics daily in the beginning of her ordeals (she has had lots of spine surgery from injuries) to now she has a pump, a patch and takes 5 narcotics a day. She is so messed up in the head too from it.
I can not speak for others with pls, we all have our own progressions. But I definately have pain!