ALSFORUMS.COM   - ALS/MND Support Group   - Fibromyalgia Support Group   - PLS Support Group   - PBP Support Group   - PMA Support Group   -  
Old 01-29-2012, 01:02 AM   #16 (permalink)
Senior Member
Registered Member
Bad Balance's Avatar
Join Date: 2010
City: Atlanta
State: GA
Country: US
Diagnosed: 12/2010
Posts: 823
Bad Balance is on a distinguished road
Default Re: new to PLS questions

I had a similar deal Neurogist was personable, but he would never commit to a diagnosis and always ended our discussions with: "But we cannot rule out ALS".

Finally I had enough and pushed him to refer me to the ALS Clinic. Unfortunately there was a diagnosis provided, but better to know. Also; better that it was PLS.

Bad Balance is offline  
Old 02-18-2012, 07:03 PM   #17 (permalink)
New Member (Say Hi)
Registered Member
Join Date: 2012
City: Grand Rapids
State: MI
Country: US
Diagnosed: 00/0000
Posts: 9
reebabs is on a distinguished road
Default Re: new to PLS questions

I am back from Cleveland Clinic and Dr Pioro does not think I have ALS or PLS. I am not presenting with classic symptoms, I think the arm and tongue tingling part. He did not think the leg was showing spasticity. The emg was done on my whole right side, not just my leg. I was probably poked more than 50 times compared with only 15 times when done at the other neuro. He also had a unique ALS protocol to be done of my MRI of the brain, that was normal. He wondered about inflammatory something, and ordered a lumbar puncture, so I am going back in 2 weeks and will know 2 weeks after that. He also does not think its MS.
I am relieved.
It is worth it to see someone who specializes in ALS.
My neuro who had said probably PLS, specializes in peripheral nerves.
A friend once said, "you have G.O.K. ...God only knows"
I think that's the closest some of us can get.
reebabs is offline  
Old 02-18-2012, 07:57 PM   #18 (permalink)
Registered Member
Join Date: 2011
City: britain
State: moved back to blighty
Country: uk
Diagnosed: 00/0000
Posts: 490
johnnyliverpool1 is on a distinguished road
Default Re: new to PLS questions

now your diagnosed without pls..or thats good..very very good...take care.....johnno
johnnyliverpool1 is offline  
Old 02-18-2012, 09:19 PM   #19 (permalink)
Senior Member
Registered Member
notgivnup's Avatar
Join Date: 2010
City: country
State: Darkside of Moon
Country: OS
Diagnosed: 11/2010
Posts: 818
Blog Entries: 1
notgivnup is on a distinguished road
Default Re: new to PLS questions

That is Good news...No PLS as previous doc suggested...The is Wonderful!. I hope you can get to the bottom of this and it can be cured or treated. Keeping you in my thoughts.{{HUGS}}
notgivnup is offline  
Closed Thread

als, eye, muscle, pls, questions, twitches, vision

Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Similar Threads for: new to PLS questions
Thread Thread Starter Forum Replies Last Post
als questions martienz27 Do I Have ALS? Is This ALS? 1 01-11-2011 06:41 PM
Please help questions ! ralph General Discussion About ALS/MND 4 05-13-2010 05:14 PM
questions scouse Do I Have ALS? Is This ALS? 5 04-01-2010 12:50 PM
More Emg questions Beach61 Do I Have ALS? Is This ALS? 2 01-25-2009 03:51 PM
EMG Questions? childermass Do I Have ALS? Is This ALS? 3 11-20-2007 11:18 PM

  ALSforums - Get help and support with ALS/MND