| | Re: new to PLS questions
I am back from Cleveland Clinic and Dr Pioro does not think I have ALS or PLS. I am not presenting with classic symptoms, I think the arm and tongue tingling part. He did not think the leg was showing spasticity. The emg was done on my whole right side, not just my leg. I was probably poked more than 50 times compared with only 15 times when done at the other neuro. He also had a unique ALS protocol to be done of my MRI of the brain, that was normal. He wondered about inflammatory something, and ordered a lumbar puncture, so I am going back in 2 weeks and will know 2 weeks after that. He also does not think its MS.
I am relieved.
It is worth it to see someone who specializes in ALS.
My neuro who had said probably PLS, specializes in peripheral nerves.
A friend once said, "you have G.O.K. ...God only knows"
I think that's the closest some of us can get.