Old 01-03-2012, 01:39 PM #1 (permalink)
New Member
 
Join Date: 2012
City: gonzales
State: louisiana
Country: US
Diagnosed: 09/2011
Interest: I am interested in learning about ALS/MND.
Posts: 12
VDELOCH is on a distinguished road
VDELOCH VDELOCH is offline
New Member
Join Date: 2012
City: gonzales
State: louisiana
Country: US
Diagnosed: 09/2011
Interest: I am interested in learning about ALS/MND.
Posts: 12
VDELOCH is on a distinguished road
Default Trying to find out if i really have pls

Hi i am Veronica this is my frist time speaking out to anyone about myself except to my doctoters and family.But this stared back in Oct,2010 when i felt some discomfort in my buttock while driving than my right leg felt heavy as if i couldnot control it than next couple of days left leg started with a shimmer like feeling wwent to a doctor and she did blood work tested my mobilty all blood work came back fine except for thyroid. so she sent me to thyroid doctor and he he will retest an he did but he said number were a little off an he will test again in 3 months. then she also sent me to neurology at that time i couldnot walk anymore without help that happen less than two weeks were he said i had transverse myelitis i was treated with steroids injection 3 times aday for 5 days i was able to walk a little after the treatment than i went back to see neuro and he said that that was all he can do so about a 4 weeks later my legs begin to to were i couldnot move them agin my buttock has a feeling like there is always persure in rectum always have vaginal discharge so i went to see another neuro and he said he thinks i have pls. he sujected tha if i didnot think he was correct tha he can send me to Huston Tx to get check out there i went an they said i have pls do anyone out there have these same symtoms,heavy legs,buttock feels like you are setting higher than what you are ,knee pain, leg swelling, just stop walking less than 2 weeks after symtoms.
VDELOCH is offline  
Old 01-03-2012, 04:57 PM #2 (permalink)
olly's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: uk
State: uk
Country: uk
Diagnosed: 11/2007
Interest: I have been diagnosed with ALS.
Posts: 2,790
olly is on a distinguished road
olly olly is offline
Extremely Helpful Member
olly's Avatar
Join Date: 2008
City: uk
State: uk
Country: uk
Diagnosed: 11/2007
Interest: I have been diagnosed with ALS.
Posts: 2,790
olly is on a distinguished road
Default Re: tRYING TO FINE OUT IF I REALLY HAVE PLS

hi veronica,welcome to the forum.
other than the legs feeling heavy you dont seem to have any symptoms of pls.
the main symptoms of pls are balance problems,spasticity/stiffness and eventual muscle weakness.
did the neuro do a clinical exam?
have you had any mri's of the brain and/or spinal cord?
the clinical signs of pls on examination are..............
positive babinski= sign of umn damage.
hyperreflexia=hyperactive reflexes.
clonus= spasticity.
it takes 3-5yrs to follow the progression to diagnose pls
you do seem to have alot of other stuff going on, i really think you should get another opinion and any of the test i mentioned if you have not had them also see a gynocologist as there could be something going on there.
olly is offline  
Old 01-04-2012, 12:58 PM #3 (permalink)
New Member
 
Join Date: 2012
City: gonzales
State: louisiana
Country: US
Diagnosed: 09/2011
Interest: I am interested in learning about ALS/MND.
Posts: 12
VDELOCH is on a distinguished road
VDELOCH VDELOCH is offline
New Member
Join Date: 2012
City: gonzales
State: louisiana
Country: US
Diagnosed: 09/2011
Interest: I am interested in learning about ALS/MND.
Posts: 12
VDELOCH is on a distinguished road
Default Re: tRYING TO FINE OUT IF I REALLY HAVE PLS

Hi veronica here and yes the frist neuro i saw did and exam ,also had mri of brian and spinal cord and that when he said i had Transversemylites . Second neuro did mri said its a rule out thing so he seem to think pls so than he sent me to Tx.were he did EMG an some other test dont remember name were they stick you with needle here and there,my lege get stiff mostly around knees cant walk at all unless with cruches. do you think a person with pls stops walking in less than two weeks after they start to have symtoms?also i will be ask ing my new neuro about the babinski,umn damage never knew anything of that thanks for your help i feel so welcome.
VDELOCH is offline  
Old 01-05-2012, 10:36 PM #4 (permalink)
Alyoop's Avatar
Very Helpful Member
 
Join Date: 2010
City: NZ
State: NZ
Country: NZ
Interest: I have been diagnosed with UMND/PLS.
Posts: 1,833
Alyoop is on a distinguished road
Alyoop Alyoop is offline
Very Helpful Member
Alyoop's Avatar
Join Date: 2010
City: NZ
State: NZ
Country: NZ
Interest: I have been diagnosed with UMND/PLS.
Posts: 1,833
Alyoop is on a distinguished road
Default Re: tRYING TO FINE OUT IF I REALLY HAVE PLS

veronica. I dont know what the doctor is basing his diagnosis on so its hard to answer your question. It seems to have all happened way too fast to be PLS where as Transverse myelitis is fast. The fact that you responded to steroids points away from PLS as well. Transverse Myelitis should have been farely obvious on your scan, so I am very confused. Sounds more like MS than PLS. I would get yet another opinion. As Olly said you cant just give somneone a Diagnosis of PLS until you have waited for the 3 -5 years to see what it evolves into.
Alyoop is offline  
Old 01-06-2012, 01:16 PM #5 (permalink)
New Member
 
Join Date: 2012
City: gonzales
State: louisiana
Country: US
Diagnosed: 09/2011
Interest: I am interested in learning about ALS/MND.
Posts: 12
VDELOCH is on a distinguished road
VDELOCH VDELOCH is offline
New Member
Join Date: 2012
City: gonzales
State: louisiana
Country: US
Diagnosed: 09/2011
Interest: I am interested in learning about ALS/MND.
Posts: 12
VDELOCH is on a distinguished road
Default Re: tRYING TO FINE OUT IF I REALLY HAVE PLS

Hey thanks for info , i am seeing a new neuro on Thursday i will be posting my out come . my daugther says it sounds like
you guys know more than the neuro i have seen.
VDELOCH is offline  
Old 01-06-2012, 02:56 PM #6 (permalink)
Alyoop's Avatar
Very Helpful Member
 
Join Date: 2010
City: NZ
State: NZ
Country: NZ
Interest: I have been diagnosed with UMND/PLS.
Posts: 1,833
Alyoop is on a distinguished road
Alyoop Alyoop is offline
Very Helpful Member
Alyoop's Avatar
Join Date: 2010
City: NZ
State: NZ
Country: NZ
Interest: I have been diagnosed with UMND/PLS.
Posts: 1,833
Alyoop is on a distinguished road
Default Re: Trying to find out if i really have pls

Veronica. You should come right out and ask what the basis for the transverse myelitis diagnosis was. Then ask specifically what the basis of the pls diagnosis is. Make them do some work and explain everything carefully to you. I have a patient that had transverse myelitis that 18 mont.hs later got ms. It's important you get a diagnosis if it's not pls as there are disease modifying treatments for some neurological problems. You don't want to be missing out.
If you have pls then make the doctors provevit to you. That's their job.
Best wishes for your appointment.
Alyoop is offline  
Old 01-06-2012, 02:57 PM #7 (permalink)
olly's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: uk
State: uk
Country: uk
Diagnosed: 11/2007
Interest: I have been diagnosed with ALS.
Posts: 2,790
olly is on a distinguished road
olly olly is offline
Extremely Helpful Member
olly's Avatar
Join Date: 2008
City: uk
State: uk
Country: uk
Diagnosed: 11/2007
Interest: I have been diagnosed with ALS.
Posts: 2,790
olly is on a distinguished road
Default Re: Trying to find out if i really have pls

hi veronica.
i found this information for you on transverse myelitis......which the symptoms/progression sounds like yours.
http://www.ninds.nih.gov/disorders/t...semyelitis.htm
by the way like aly said according to this info there can be underlying problems/deseases that can cause this.
olly is offline  
Closed Thread

Tags
back, driving, family, knee pain, neurology, pain, pls, steroids, swelling, treatment, work


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
ALS/mg/trying to find hope Kerbear Do I Have ALS? Is This ALS? 29 10-30-2015 03:13 PM
How to Find the Forum? Graybeard General Discussion About ALS/MND 8 10-05-2014 10:50 AM
How do I find caregiving help? Lspruengli People With ALS - "PALS" 7 06-13-2013 02:21 AM
Where to find a vehicle? 913mommyof3 Current Caregivers (CALS) 14 09-21-2011 04:39 PM
I'm new here. try to find out more info about PLS paul318 General Discussion About PLS 14 06-10-2009 03:20 PM
New Member - trying to find where I fit in! Linnie General Discussion About ALS/MND 12 08-11-2008 11:15 AM
Find the Joy in Life ilovemymom Current Caregivers (CALS) 6 06-27-2008 06:28 PM
Can't find a Dr. in St. Louis Ecowarrior General Discussion About ALS/MND 2 02-12-2007 08:50 PM
just find out my dad has als STACI Current Caregivers (CALS) 9 03-20-2005 07:49 AM
help...i need to find out some info! billybthorton General Discussion About ALS/MND 0 11-01-2004 10:36 AM


All times are GMT -5. The time now is 12:45 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016