Zaphoon
Extremely helpful member
- Joined
- Aug 2, 2008
- Messages
- 2,857
- Reason
- DX UMND/PLS
- Diagnosis
- 08/2011
- Country
- US
- State
- Missouri
- City
- Springfield
Why?
I drove an eight hour roundtrip to see a rheumatologist that after having looked over me and the latest results from 14 tubes of tested blood asked, "Why were you referred to me?" I told her that the neurologist had discovered identical oligoclonal bands in my csf and serum and that I had also been told I had a case of inverse psoriasis, commonly found in cases of psoriatic arthritis.
The doc saw my small rash of inverted psoriasis clearly but was not successful in seeing anything arthritic but said it could be lurking, festering, waiting and that it is sometimes very difficult to diagnose in the early stages.
I actually had 2 rheumatologists look me over today and to make my trip a little more worthwhile, xrays were ordered of my feet and hips to see if there may be some slight trace of arthritis in those areas. It was somewhat mentioned that my case seemed more fit for a neurologist after checking my reflexes and seeing my toe go up on the right side.
(Babinski reappeared).
My right leg reacted odd when the doc tested for strength. She put downward pressure on my leg on my thigh just behind my kneecap and told me to raise my leg. It did this yo-yo thing it had never done before. I found this entertaining.
So, I'm done with chasing rabbit trails and have just decided to live with the stiffness, spasticity, cramps and whatnot with no further search for answers unless things get worse. The weakness discovered in the right leg is minor, very minor and not an impediment at this time.
At the end of the day, I was told to call them if I have a flare-up in my joints. They may be able to get a clearer picture if they can catch things as they occur. Very nice doctors and they were both very pretty, too!
PS
My blood received raving revues!
I drove an eight hour roundtrip to see a rheumatologist that after having looked over me and the latest results from 14 tubes of tested blood asked, "Why were you referred to me?" I told her that the neurologist had discovered identical oligoclonal bands in my csf and serum and that I had also been told I had a case of inverse psoriasis, commonly found in cases of psoriatic arthritis.
The doc saw my small rash of inverted psoriasis clearly but was not successful in seeing anything arthritic but said it could be lurking, festering, waiting and that it is sometimes very difficult to diagnose in the early stages.
I actually had 2 rheumatologists look me over today and to make my trip a little more worthwhile, xrays were ordered of my feet and hips to see if there may be some slight trace of arthritis in those areas. It was somewhat mentioned that my case seemed more fit for a neurologist after checking my reflexes and seeing my toe go up on the right side.
(Babinski reappeared).
My right leg reacted odd when the doc tested for strength. She put downward pressure on my leg on my thigh just behind my kneecap and told me to raise my leg. It did this yo-yo thing it had never done before. I found this entertaining.
So, I'm done with chasing rabbit trails and have just decided to live with the stiffness, spasticity, cramps and whatnot with no further search for answers unless things get worse. The weakness discovered in the right leg is minor, very minor and not an impediment at this time.
At the end of the day, I was told to call them if I have a flare-up in my joints. They may be able to get a clearer picture if they can catch things as they occur. Very nice doctors and they were both very pretty, too!
PS
My blood received raving revues!
Last edited:
Tonight is the opening performance with two performances tomorrow and one on Sunday. If your daughter has a chance she might want to take your grandchildren to see it. The floor in front of the stage is where all the little guys sit, and the plays are always less than 45 minutes since they are directed to keep the children's attention.
