AKmom
Senior member
- Joined
- Jun 2, 2010
- Messages
- 608
- Reason
- DX UMND/PLS
- Diagnosis
- 11/2009
- Country
- US
- State
- Alaska
- City
- Wasilla
I origninally wrote this as a response to a note on my messages wall but it was too long to be posted there. So I thought I might as well post here since maybe others are wondering where I have been too.
I have been better thats for sure. I have been dealing with tons of spastic spasms. I am chalking it up to the added stress I am under is causing it to be worse. Not sitting in the chair as much as I should since my hubby had surgery. I cannot get it out of the suburban by myself and he is still recovering and cannot lift anything. When the boys are with me then I use it when I can.
If you all can keep my brother in your prayers if you think of it, his pancratic cancer has come back. He was doing well after treatments but then they said they had a shortage of meds and couldn't give him a set of treatments. Yet I know another person who was taking the same treatment and had private insurance (my bro is on the obama poor man insurance) and they still got the treatment. So my bro's cancer had time to spread again and its back into the pancreas. Its not looking good. He is going to continue treatments now, but it might be too late.
So between dealing with my bro, my mom who is coming unglued over the situation, John's recovery and a new job with my company...I can only image that stress is a huge factor in how spastic I have become.
I also have had an annoying twitch on the inside of my left knee for over a week straight, and then two days ago it starting on the exact opposite knee! So now both knees are twitching, but they are extremely weak when I stand. Like they are going to give way at any minute. I have yet to fall but I do not like the way they feel and getting up to a standing position from sitting is extremely difficult. I have also noticed now that I am having to do the driving, (till John is recovered enough to drive) that it seems the gas peddle and brake are harder to push down. Like I have to put much more effort into it. This is very upsetting to me. I haven't been driving for months, but to realize now that if things continue to progress as they have been....its just hard to digest the possibilities.
I am going on a cruise to the mediterranean in 1 month and we will be gone a month! I look forward to it but am concerned that I might not be able to walk like I thought I could when we first booked it over a year ago. I have progressed so much faster it seems this past year. I want to ride a camel. I want to walk up the spanish steps. I want to see Jerusalem without bouncing on cobble stones with a pwc. Ok...I will get off my pity party. PLS stinks I get it.
I have been better thats for sure. I have been dealing with tons of spastic spasms. I am chalking it up to the added stress I am under is causing it to be worse. Not sitting in the chair as much as I should since my hubby had surgery. I cannot get it out of the suburban by myself and he is still recovering and cannot lift anything. When the boys are with me then I use it when I can.
If you all can keep my brother in your prayers if you think of it, his pancratic cancer has come back. He was doing well after treatments but then they said they had a shortage of meds and couldn't give him a set of treatments. Yet I know another person who was taking the same treatment and had private insurance (my bro is on the obama poor man insurance) and they still got the treatment. So my bro's cancer had time to spread again and its back into the pancreas. Its not looking good. He is going to continue treatments now, but it might be too late.
So between dealing with my bro, my mom who is coming unglued over the situation, John's recovery and a new job with my company...I can only image that stress is a huge factor in how spastic I have become.
I also have had an annoying twitch on the inside of my left knee for over a week straight, and then two days ago it starting on the exact opposite knee! So now both knees are twitching, but they are extremely weak when I stand. Like they are going to give way at any minute. I have yet to fall but I do not like the way they feel and getting up to a standing position from sitting is extremely difficult. I have also noticed now that I am having to do the driving, (till John is recovered enough to drive) that it seems the gas peddle and brake are harder to push down. Like I have to put much more effort into it. This is very upsetting to me. I haven't been driving for months, but to realize now that if things continue to progress as they have been....its just hard to digest the possibilities.
I am going on a cruise to the mediterranean in 1 month and we will be gone a month! I look forward to it but am concerned that I might not be able to walk like I thought I could when we first booked it over a year ago. I have progressed so much faster it seems this past year. I want to ride a camel. I want to walk up the spanish steps. I want to see Jerusalem without bouncing on cobble stones with a pwc. Ok...I will get off my pity party. PLS stinks I get it.
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