dank
New member
- Joined
- Jul 5, 2011
- Messages
- 9
- Reason
- DX UMND/PLS
- Diagnosis
- 07/2011
- Country
- US
- State
- Massachusetts
- City
- Quincy
I had my first meeting with my neurologist today since the PLS diagnosis. One thing that he said that I found particularly interesting (alarming) was that "the majority of PLS cases become ALS". This is the first I had heard of that and I haven't read anything anywhere that confirms this. So he basically said that I had PLS but I was almost certain to end up with ALS. Needless to say this is very upsetting, considering I was just coming to grips with having PLS and looking at the bright side of feeling fortunate with not having ALS. Now I'm just confused. I went from hoping for a slow progression and thinking I still had a lifetime ahead of me to being told I was likely dead in 15 years (his estimate).
I have scheduled an appointment with a neurologist that specializes in ALS but that is not until October 11.
Does anyone have any feedback in relation to this?
I have scheduled an appointment with a neurologist that specializes in ALS but that is not until October 11.
Does anyone have any feedback in relation to this?