another weird....

[johnnyliverpool1]

.....and me last cos u r getting bored ...a get up in the morning stiff as a board feeling like a wizzan decrepid old fuddy duddy on his last legs, worthy only of the nackers yard....then i looks into the bathroom mirror...and shocks...i looks good...even if a say so mesen....why.....cos i reckon me dodgy umn,s are exercising my body at all times with the spaz stuff....so feel shit look tidy...everybody says..u r looking well johnnypooler...well a should do, me muscles are on permanent shift..weird side effect...wad u think....dos u look good......johnnyliverpool

 

[Ms. Pie]

Not first thing in the morning I don't! LOL! Poor Dear Poolers. I have stiffness first thing in the morning in my calves. I can hardly walk at first. By the time my bath is running it's all stretched out for the day. I know what you mean when you say you feel like a decrepid old fuddy duddy on his last legs. I feel that way every morning but when I look in the mirror I look not so hot.
Hugs to you Mr. Fuddy Duddy!

 

[Ms. Pie]

After my bath and a blow dry I look pretty good though!

 

[johnnyliverpool1]

everything is reletive ms pie...expect the worst and anything less is real good........johnno

 

[Ms. Pie]

True words my friend!

 

[LizT]

Johnny- Ive got a friend who has Cerebal Palsy- different from UMN, but he has muscles like youve never seen from how tight he keeps them. Washboard abs... and he doesnt even know it!

 

[johnnyliverpool1]

litzy..must be real tough on him...permenant non stop workout...poor lad.....pooler

 

[LizT]

yes johnny, it is hard on him. he has a baclofen pump to help him relax, but it doesnt completely stop it. it wears him out and he has to take multiple naps a day. sometimes he just cries because he is so sore and tired. He cannot speak so sometimes its difficult to know what to do for him.

 

[Ms. Pie]

Geez that sounds terrible. ALS truly sucks but I am aware that there are much worse things. Love to you both!

 

[notme]

I'm always really bad in the morning. I used to jump up and start my day. I've had to make my classes I teach start later because I have to be up a minimum of two hours before the body starts to work properly.

I hobble for at least an hour. LOL< I avoid mirrors.

 

[Ms. Pie]

Patty, didn't you say your legs look better then ever now? Must be because of spasticity. Mine look pretty good too!

 

[AKmom]

my leg muscles looked pretty good till about 6 months ago...now there are dents in them and only half the calf is plump, the other half is skinny. I am thinking the AFO's for the foot drop are making other muscles atrophy.