Old 07-10-2011, 10:41 PM #1 (permalink)
New Member
 
Join Date: 2007
City: Altoona
State: PA
Country: US
Diagnosed: 09/2007
Interest: Primary Lateral Sclorosis care giver
Posts: 63
Gracie is on a distinguished road
Gracie Gracie is offline
New Member
Join Date: 2007
City: Altoona
State: PA
Country: US
Diagnosed: 09/2007
Interest: Primary Lateral Sclorosis care giver
Posts: 63
Gracie is on a distinguished road
Default PLS and Bladder Urgency

Well things are certainly getting harder to deal with. My husband has been in a distinct decline since diagnosed 4 1/2 years ago. Recently he has had bladder urgency and when one doesn't move very fast can be a real urgent problem. I have noticed his ankles have been swelling but not sure if it is because he sits too much or possibly the hot weather or both. He does appear to have pitted edema. Has anyone with PLS had similar problems? Thanks, Gracie
Gracie is offline  
Old 07-11-2011, 03:00 AM #2 (permalink)
olly's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: uk
State: uk
Country: uk
Diagnosed: 11/2007
Interest: I have been diagnosed with ALS.
Posts: 2,791
olly is on a distinguished road
olly olly is offline
Extremely Helpful Member
olly's Avatar
Join Date: 2008
City: uk
State: uk
Country: uk
Diagnosed: 11/2007
Interest: I have been diagnosed with ALS.
Posts: 2,791
olly is on a distinguished road
Default Re: PLS and Bladder Urgency

yes gracie,unfortunatley it all sounds familiar.
had bladder urgencey for oh! its been some years maybe 7 or 8,it had got worse the past few years resulting in incontinance sometimes.
the bladder urgencey is caused by spasms in the bladder,you can get medication for this but not sure if it works ok.
my feet and ankles swell when sitting too long and in very warm/hot weather also

have you seen his gp or neuro recently and mentioned all your concerns?
you can talk to the doctors on your own so as not to upset your husband.
i ofton think how hard this disease must be for the older ones who get it,it must take more out of the body.
please get in to see his gp or neuro if possible and keep us updated.
thinking of you both,caroline
olly is offline  
Old 07-11-2011, 08:03 AM #3 (permalink)
Bad Balance's Avatar
Senior Member
 
Join Date: 2010
City: Atlanta
State: GA
Country: US
Diagnosed: 12/2010
Interest: I have been diagnosed with ALS.
Posts: 824
Bad Balance is on a distinguished road
Bad Balance Bad Balance is offline
Senior Member
Bad Balance's Avatar
Join Date: 2010
City: Atlanta
State: GA
Country: US
Diagnosed: 12/2010
Interest: I have been diagnosed with ALS.
Posts: 824
Bad Balance is on a distinguished road
Default Re: PLS and Bladder Urgency

I have a similar problem. I really have to pay attention to the first hint of an urge. I cannot count on holding it as I used to.

A move towards the bathroom can end in disaster if I wait even a bit. It is almost as if the thought causes the "letting go"....not always, but there have been a few "clean up on aisle 7" incidents.

There are meds, but I haven't done that yet. As mentioned, I just have to really head that direction at first thought. Sometimes a little pinching works, but you still have to manage the clothing issues.

- Jerry
Bad Balance is offline  
Old 07-11-2011, 08:54 AM #4 (permalink)
olly's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: uk
State: uk
Country: uk
Diagnosed: 11/2007
Interest: I have been diagnosed with ALS.
Posts: 2,791
olly is on a distinguished road
olly olly is offline
Extremely Helpful Member
olly's Avatar
Join Date: 2008
City: uk
State: uk
Country: uk
Diagnosed: 11/2007
Interest: I have been diagnosed with ALS.
Posts: 2,791
olly is on a distinguished road
Default Re: PLS and Bladder Urgency

A move towards the bathroom can end in disaster if I wait even a bit. It is almost as if the thought causes the "letting go"....not always, but there have been a few "clean up on aisle 7" incidents.

oh jerry,thats just like me.
olly is offline  
Old 07-11-2011, 03:40 PM #5 (permalink)
Al's Avatar
Moderator
Forum Moderator
 
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 8,030
Al is on a distinguished road
♥ Al Al is offline
Moderator
Forum Moderator

Al's Avatar
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 8,030
Al is on a distinguished road
Default Re: PLS and Bladder Urgency

I take Detrol prescription for urgency. It works pretty well.

AL.
Al is offline  
Old 07-14-2011, 09:57 PM #6 (permalink)
New Member
 
Join Date: 2007
City: Altoona
State: PA
Country: US
Diagnosed: 09/2007
Interest: Primary Lateral Sclorosis care giver
Posts: 63
Gracie is on a distinguished road
Gracie Gracie is offline
New Member
Join Date: 2007
City: Altoona
State: PA
Country: US
Diagnosed: 09/2007
Interest: Primary Lateral Sclorosis care giver
Posts: 63
Gracie is on a distinguished road
Default Re: PLS and Bladder Urgency

Thanks everyone. I really had to laugh at the "clean up on Isle 7" it isn't a laughing matter....but it doesn't matter if you laugh. My husband tried Detrol LA and a few other meds but nothing really helps. I bought a new product for baby's, cloth diaper inserts and I sewed them into the front of my husbands undershorts, they really work well and they aren't as obvious as the bulky pads are. He likes the shorts with a little bit of a leg in them so now he can wear them and be comfortable. He can no longer wear his blue jeans because he can't manage the buttons or zippers so I ordered pants with elastic around the waist and this works out well. People without this disease have no idea of all the things they take for granted. Does anyone take Celebrex for the pain in their legs.
Gracie is offline  
Old 07-15-2011, 04:51 AM #7 (permalink)
olly's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: uk
State: uk
Country: uk
Diagnosed: 11/2007
Interest: I have been diagnosed with ALS.
Posts: 2,791
olly is on a distinguished road
olly olly is offline
Extremely Helpful Member
olly's Avatar
Join Date: 2008
City: uk
State: uk
Country: uk
Diagnosed: 11/2007
Interest: I have been diagnosed with ALS.
Posts: 2,791
olly is on a distinguished road
Default Re: PLS and Bladder Urgency

never heard of celebrex gracie,is he on baclofen? i think you mentioned he is.
we have to laugh at these things sometimes.............or we would just be one big blubbering mess.
i find looser trousers are best,i have a few pairs of black loose fitting trousers i wear around the house..........comfortable to sit and move around in and easy to whip down on bathroom trips.
take care,thinking of you both.......caroline
olly is offline  
Old 07-19-2011, 03:00 PM #8 (permalink)
notme's Avatar
Extremely Helpful Member
 
Join Date: 2011
City: Orlando
State: Fl
Country: US
Diagnosed: 08/2011
Interest: I have been diagnosed with ALS.
Posts: 2,665
Blog Entries: 4
notme is on a distinguished road
notme notme is offline
Extremely Helpful Member
notme's Avatar
Join Date: 2011
City: Orlando
State: Fl
Country: US
Diagnosed: 08/2011
Interest: I have been diagnosed with ALS.
Posts: 2,665
Blog Entries: 4
notme is on a distinguished road
Default Re: PLS and Bladder Urgency

I have never heard of celsbrex for pain. I take baclofen for spasms. Isn't celsbrex for arthritis?
notme is offline  
Closed Thread

Tags
decline, diagnosed, pls, problem, problems, swelling, urgent



Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Bladder issues? Port General Discussion About PLS 8 12-08-2014 06:28 AM
Bladder Problems littlered People With ALS - "PALS" 16 12-04-2014 11:43 AM
Pls w/leg pain, Myoclonic Jerking, RA, or bladder spasticity? Whitetiger General Discussion About PLS 6 05-16-2012 06:53 AM
Sudden loss of bladder control Miss Current Caregivers (CALS) 26 12-15-2010 02:28 PM
Neurogenic bladder katekath Current Caregivers (CALS) 7 12-08-2010 03:36 PM
E coli and bladder infection Ellamay General Discussion About ALS/MND 6 08-26-2010 08:18 AM
Problem with Urinary Catheter, and Bladder-spasms while on amphetamines KEDASO General Discussion About ALS/MND 17 01-21-2010 06:56 AM
Bladder Control Issues? rolark General Discussion About ALS/MND 6 05-15-2007 06:42 PM
need help subject bladder felicia General Discussion About ALS/MND 4 11-30-2006 03:07 PM


All times are GMT -5. The time now is 10:35 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016