IhavePLS
Distinguished member
- Joined
- Apr 17, 2011
- Messages
- 279
- Reason
- DX UMND/PLS
- Diagnosis
- 12/2010
- Country
- US
- State
- Pennsylvania
- City
- SW
Hi to all,
New member here - I was responding to another post, and thought I went off-track so badly that I'd better post an initial thread instead (sorry)!
I am a 51 yo male, recently diagnosed with PLS - although I've had symptoms now for a few years (perhaps more). PLS is a miserable condition - one that has truly (negatively) impacted my life. While the spasticity and pain in both of my legs (and now my arms) does seem to ebb and wane, both are usually always there...only in varying degrees at different times. I recently began to develop some pretty severe neck pain w/ spasms - and pain down both arms. Narcotics don't seem to do a lot for me (at least I don't think so).
I wonder if anyone here ever experiences a "fullness" in their legs - and sometimes feelings of malaise somewhat like having the flu? I get this often along with spasms and pain. The problem with managing pain is that I never know where and when it'll show up. What does seem to work for me - although for ~20 minutes or so (when sx. return with a vengeance) are hot baths.
I'm glad I found this forum!
Mike
New member here - I was responding to another post, and thought I went off-track so badly that I'd better post an initial thread instead (sorry)!
I am a 51 yo male, recently diagnosed with PLS - although I've had symptoms now for a few years (perhaps more). PLS is a miserable condition - one that has truly (negatively) impacted my life. While the spasticity and pain in both of my legs (and now my arms) does seem to ebb and wane, both are usually always there...only in varying degrees at different times. I recently began to develop some pretty severe neck pain w/ spasms - and pain down both arms. Narcotics don't seem to do a lot for me (at least I don't think so).
I wonder if anyone here ever experiences a "fullness" in their legs - and sometimes feelings of malaise somewhat like having the flu? I get this often along with spasms and pain. The problem with managing pain is that I never know where and when it'll show up. What does seem to work for me - although for ~20 minutes or so (when sx. return with a vengeance) are hot baths.
I'm glad I found this forum!
Mike