Tokahfang
Moderator emeritus
- Joined
- Jan 31, 2010
- Messages
- 791
- Diagnosis
- 07/2009
- Country
- US
- State
- VA
- City
- Richmond
I wanted to post an update now that I understand things better and have the present fairly under control.
When asked by the doctor, I told him I had been experiencing trouble for a few months, with some minor problems before that maybe. Boy was I wrong! I just got my new green tinted, polarized, back glare protected glasses and the world looks completely different. The trees in the yard each have differently shaded leaves, distinctly different colors. Video games I played a year and a half ago have icons I have never seen. I thought they were all blue G's. Browns and reds and purples are still dodgy, but at least now I know that I can't see them correctly.
My glasses have some side effects, too. I can't see the display on my powerchair with them, so I am setting the profile and speed by memory. My tv is only viewable at certain angles. It is the polarization that does it.
It seems that this, like other progression, can be very sneaky. I had no idea what I was missing. I guess that makes this summer just a sped up progression time. I did confirm that it isn't the fault of my diabetes, so that with the pallor pattern solidifies the diagnosis. These diseases are a wild ride, aren't they?
In other news, the blood tests are in, and it is official: the spinal damage has hit my thermoregulatory system. My core temperature doesn't break 97 degrees anymore, and commonly slips below 95, uncommonly under 93. The worst part is that I sweat like crazy as my body delusionally thinks we are too warm!
And in a final bit of irony, I am completely healthy. My organ function, cell counts, blood sugar, blood pressure, etc are fantastic. By most measures, that makes me the healthiest person in my house. 8)
When asked by the doctor, I told him I had been experiencing trouble for a few months, with some minor problems before that maybe. Boy was I wrong! I just got my new green tinted, polarized, back glare protected glasses and the world looks completely different. The trees in the yard each have differently shaded leaves, distinctly different colors. Video games I played a year and a half ago have icons I have never seen. I thought they were all blue G's. Browns and reds and purples are still dodgy, but at least now I know that I can't see them correctly.
My glasses have some side effects, too. I can't see the display on my powerchair with them, so I am setting the profile and speed by memory. My tv is only viewable at certain angles. It is the polarization that does it.
It seems that this, like other progression, can be very sneaky. I had no idea what I was missing. I guess that makes this summer just a sped up progression time. I did confirm that it isn't the fault of my diabetes, so that with the pallor pattern solidifies the diagnosis. These diseases are a wild ride, aren't they?
In other news, the blood tests are in, and it is official: the spinal damage has hit my thermoregulatory system. My core temperature doesn't break 97 degrees anymore, and commonly slips below 95, uncommonly under 93. The worst part is that I sweat like crazy as my body delusionally thinks we are too warm!
And in a final bit of irony, I am completely healthy. My organ function, cell counts, blood sugar, blood pressure, etc are fantastic. By most measures, that makes me the healthiest person in my house. 8)