Old 04-20-2010, 08:31 AM #1 (permalink)
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Default How often do you go back for testing/Emg to re-evaluate for als?

Hi Friends,

Once given a diagnosis of PLS how often do you go back for Emg testing to make certain it has not progressed to als?

Is it the Emg that must show something in order to go from pls to als?

Thank you, Fondly,
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Old 04-20-2010, 12:15 PM #2 (permalink)
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Default Re: How often do you go back for testing/Emg to re-evaluate for als?

Shizzy, my husband had 2 EMGs in early 2008 and again in Sept 2009. We changed doctors early part of this year so the new doctor wanted his own EMG. I don't know how the '08 ones compared to '09 but the EMG done recently was more extensive. Earlier EMGs were done on his legs only.
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Old 04-20-2010, 12:29 PM #3 (permalink)
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Default Re: How often do you go back for testing/Emg to re-evaluate for als?

I think it must be very individual by doctor, the practice I go to hates to order EMGs. That bothered me after my progression sped up crazily, but I came to peace with it. What it is and the course it takes matters a lot more than a name!
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Old 04-20-2010, 10:15 PM #4 (permalink)
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Default Re: How often do you go back for testing/Emg to re-evaluate for als?

Shizzy,

I was diagnosed with PLS in 9/2009. Both of my EMG's came out "clean".

BTW, I go to the doctor in Denver!

XO Valorie
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Old 04-20-2010, 10:54 PM #5 (permalink)
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Default Re: How often do you go back for testing/Emg to re-evaluate for als?

If your condition changes to show muscle atrophy, my guess is the neurologist would then do another EMG.
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Old 04-21-2010, 09:53 AM #6 (permalink)
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Default Re: How often do you go back for testing/Emg to re-evaluate for als?

Thank you all for your replies! How kind!

I was trying to figure out how the Dr asseses this disease & its possible progression to als. How can he examine LMN's without an emg.

I assumed they do an emg at every visit, otherwise, how can he be sure it has not progressed?

Thankyou, Fondly
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Old 04-21-2010, 09:09 PM #7 (permalink)
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Default Re: How often do you go back for testing/Emg to re-evaluate for als?

Most doctors will watch like Kim said, and they will repeat emg if they feel it is needed, sometimes yearly.
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Old 04-23-2010, 07:22 PM #8 (permalink)
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Default Re: How often do you go back for testing/Emg to re-evaluate for als?

With PLS, the progression is usually much slower than with ALS. If your progression speeds up and you have spreading weakness with visible atrophy, you will almost certainly have another EMG.

Last edited by Zaphoon : 04-23-2010 at 07:23 PM Reason: fixed it
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Old 04-25-2010, 04:30 PM #9 (permalink)
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Default Re: How often do you go back for testing/Emg to re-evaluate for als?

I was diagnosed with bulbar PLS in 2006. In 2008 I noticed my limbs being affected. I didn"t have another EMG until 2009, which showed LMN damage. My diagnosed has been re-classified now to ALS.
So I would think that when new areas start being affected, or you start seeing marked advancement, request another EMG.

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